Share your blood cancer story

Every person touched by blood cancer has a unique and important story to tell.

Your story counts

Stories are our most powerful tool to spread awareness of blood cancer, to inspire others going through a diagnosis and to encourage support from the wider community.

Whether you are living with a blood cancer, a carer of a loved one battling the disease, a researcher, a policy-maker or one of our valued supporters, fundraisers, members or volunteers – we want to hear your story.

Fill in our form with your story and photos. We will get in contact before we share with our blood cancer community, supporters, and partners.

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Read our latest inspiring stories:

Treatment and transplant news

Once a blood cancer treatment is developed, it needs to be approved for sale in Australia and subsidised, or ‘listed’, otherwise the cost for the treatment can be unaffordable for many patients. The Medical Services Advisory Committee (MSAC) or Pharmaceutical Benefits Advisory Committee (PBAC) appraises a new treatment and provides advice to the Government on whether it should be publicly funded. This includes seeking consumer comments. Here’s a summary of recent new and recommended listings for blood cancer treatments. The Leukaemia Foundation provided advice and consumer comments to PBAC/MSAC in support of these therapies being available to patients.

Advocacy and policy
Treatments and side-effects

Blood cancer ride proves Perry’s toughest race

As Perry Judd slowly pedalled over the finishing line at the prestigious Grafton to Inverell Cycle Classic in 2013, supposedly in the form of his life but somehow lagging far behind the competition, he knew something wasn’t right. Physically exhausted, Perry feared he had glandular fever, but a blood test revealed something much more dangerous. The then 37-year-old explained: “I had a call from the GP: ‘Please come and see me, we need to talk urgently. You need to come in right away’.

Acute myeloid leukaemia
Treatments and side-effects

Physiotherapist and lymphoma survivor Julie Allen on cancer related fatigue

Discover how physiotherapist Julie Allen tackles cancer fatigue and lymphoma, enhancing the quality of life and survival for blood cancer patients.

Interviews with experts
Non-Hodgkin lymphoma

Unlocking the Mysteries of Blood Cancer

In the ever-evolving landscape of blood cancer research, the quest to combat blood cancer continues to push boundaries. The New Directions in Leukaemia Research (NDLR) event in Adelaide last month brought together leading minds in the field to discuss breakthroughs, challenges, and the future of leukaemia treatment. From cutting-edge advancements in therapies to the promise of personalised medicine, the conference, sponsored by the Leukaemia Foundation, shed light on the latest discoveries and strategies shaping the fight against leukaemia.

Research

Theresa Webb: ‘I’ve always been a survivor’

Blood cancer casts a long shadow over many Australian families, but for Theresa Webb and her family, its shadow has been longer than most. Theresa was first diagnosed with blood cancer in 2002 after discovering a small hard lump near her collarbone. A biopsy revealed the then 30-year-old had a type of blood cancer called non-Hodgkin lymphoma.

Acute lymphoblastic leukaemia
Carers
Lifestyle and living well
Non-Hodgkin lymphoma