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Stories

From real patient stories to tips on living well, hear firsthand from people who have faced blood cancer.

We’ve also got the latest research and advocacy news, as well as stories from our wonderful fundraisers and donors. You can subscribe to our e-newsletters and event news here.

Same cancer, same drug but our access to treatment was anything but consistent

They’re three women all battling an incurable type of blood cancer, but Neda, Nikki and Shirley have felt hardship in very different ways.

  • Myeloma
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Neda Masters

I needed better information about clinical trial options

Matthew Fogarty has spent almost five years regularly travelling to the other side of the world to collect the handful of pills that keep his blood cancer at bay.

  • Other blood cancers
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Matthew Fogarty

I took control after becoming adrift in the system

The long wait for a diagnosis took its toll on Bronwyn Bisley, but her biggest challenges lay ahead as the information she desperately needed dried up.

  • Hodgkin lymphoma
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Bronwyn Bisley

Personalised cellular therapy gives Hunter a future

A cutting-edge cellular therapy, made possible by breakthrough research, has given seven-year-old Hunter hope for a brighter future.

  • Acute lymphoblastic leukaemia
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The Madden Family

Drug discovery has remarkable potential for high-risk childhood leukaemia

Dr Michelle Henderson's research is laying the groundwork to develop a promising new therapy for infant ALL.

  • Acute lymphoblastic leukaemia
  • Research
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Dr Michelle Henderson in the lab

From PhD in Melbourne to postdoc in New York

New York-based, Aussie researcher Matt Witkowski has his sights set on improving the effectiveness of CAR T-cell therapy.

  • Acute lymphoblastic leukaemia
  • Research
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Matthew Witkowski

Daratumumab – first new myeloma agent PBAC-recommended in years

The drug has received a positive recommendation for PBS listing.

  • Myeloma
  • Treatments and side-effects
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Darzalex

Shirley’s “so well” on her latest treatment – daratumumab

Shirley Irwin has had radiotherapy and two transplants, had surgery, five different lines of treatment, and relapsed twice.

  • Myeloma
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Bruce and Shirley Irwin on the beach

Research aims to improve QOL by decreasing treatment toxicity

Kate Vandyke is leading exciting research examining whether a new inhibitor can be used to prepare myeloma patients for therapies and increase their efficacy.

  • Myeloma
  • Research
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Kate van Dyke

Navigating childhood blood cancer during a pandemic

Archer spent nine months, hundreds of kilometres from home and across state borders, undergoing life-saving blood cancer treatment during the COVID-19 pandemic. 

  • Acute lymphoblastic leukaemia
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Archer Bermingham

Baby Daisy spends first year conquering blood cancer

To mark September’s Childhood Cancer Awareness Month, we’re sharing the inspiring stories of little warriors like Daisy, who was diagnosed with an aggressive blood cancer at just four months old.

  • Acute lymphoblastic leukaemia
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Daisy Neve

One in 110,000: Neda’s Story

Neda has experienced first-hand the benefit of Leukaemia Foundation support services - all thanks to the generosity of Australians.

  • Myeloma
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Woman in a headscarf smiling at the camera

Thank you for being there when it matters most

Leukaemia Foundation Chairman, Dr Carrie Hillyard, has a special message for our supporters.

  • Our supporters
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Carrie Hillyard receiving AM

Self-care and honesty vital for dads living with blood cancer

This Father’s Day, and every day, we’re celebrating brave Aussie dads like Bill Kuluris, who are living with a blood cancer.

  • Chronic lymphocytic leukaemia
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Bill Kuluris with family

Davina’s selfless generosity could spark research breakthrough

Through a Gift in her Will, Davina's been able to fund strategic research projects to help people with blood cancer.

  • Myeloma
  • Our supporters
  • Research
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Davina Sickerdick standing outside Buckingham Palace in London

You’re investing in the researchers of tomorrow, today

Through the generosity of supporters, Dr Khai Li Chai is able to undertake a three year PhD Scholarship.

  • Our supporters
  • Research
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Dr Khai Li Chai

Remembering Jacob: ‘Leukaemia Sux!’

The McLeod-Steinmetz family have been honouring the memory of their son Jacob, since losing him 15 years ago.

  • Grief and loss
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Jacob McLeod-Steinmetz with the family dog

Music therapy – creative support for the bereaved 

Music therapist Angela Delaney explains how music therapy can contribute to the grief process.

  • Grief and loss
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Angela Delaney holding a guitar, standing at a microphone

Meet our national Grief and Bereavement Services team

Here are the staff that can help through the most challenging experience of loss.

  • Grief and loss
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Donita Menon

“Trev is still looking after me” says Pauline

Pauline Vedelago tells the story of her husband of 31 years, Trevor.

  • Chronic lymphocytic leukaemia
  • Grief and loss
  • Non-Hodgkin lymphoma
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Trevor and Pauline with their dog