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Stories

From real patient stories to tips on living well, hear firsthand from people who have faced blood cancer.

We’ve also got the latest research and advocacy news, as well as stories from our wonderful fundraisers and donors. You can subscribe to our e-newsletters and event news here.

Terry’s ups and downs during 20 years living with CML

Terry Robson-Petch has been living with CML for 20 years.

  • Chronic myeloid leukaemia
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Terry Robson-Petch with his partner and daughter 

Expert series interview: Dr Naranie Shanmuganathan on CML

The greatest unmet need in CML is the ability to predict outcomes at the time of diagnosis according to Dr Naranie Shanmuganathan, a consultant haematologist at Royal Adelaide Hospital and SA Pathology.

  • Chronic myeloid leukaemia
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Dr Naranie Shanmuganathan

Regina’s new life is about making memories with her girls

The week before Regina Batten’s wedding, in August 2017, she was diagnosed with AML. She had just celebrated her 30th birthday and was about to marry the father of her three children.

  • Acute myeloid leukaemia
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Regina with her twins

Expert interview with Dr Cameron Curley on transplantation and CAR-T therapy

Dr Cameron Curley describes CAR T-cell therapy as “arguably the biggest breakthrough in the treatment of many blood cancers in the last decade”. 

  • Acute myeloid leukaemia
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Dr Cameron Curley

Innovative new international trial for relapsed paediatric ALL opens soon

A clinical trial, due to open in mid-2022, will give young people access to two promising new ALL drugs.

  • Acute lymphoblastic leukaemia
  • Research
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Illustration of a microscope, test tubes, and clipboard

Phil’s potential melanoma turned out to be CLL

Ongoing fatigue was the symptom that prompted Phil Nicholls to have his first medical assessment in years and it resulted in his diagnosis with chronic lymphocytic leukaemia (CLL). 

  • Chronic lymphocytic leukaemia
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Phil and Cheryll Nicholls

Expert interview: Professor John Seymour

Find out why the clinical haematologist is dedicating his life to CLL.

  • Chronic lymphocytic leukaemia
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Professor John Seymour

Patients retain remission for 10+ years after CAR T-cell therapy

It’s 10 years since the first CLL patients were treated with CAR T-cell therapy and they are still in remission.

  • Chronic lymphocytic leukaemia
  • Treatments and side-effects
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Illustration of various treatments, pills, medicines

The fear, worry, and relief of having and recovering from COVID-19

In March 2022, member of the Blood Cancer Taskforce and Cancer Australia's Advisory Council Deborah Henderson found out she had COVID-19. Here, she shares her first-person narrative of that experience.

  • Chronic lymphocytic leukaemia
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Deborah Henderson

Personal grief rituals

Personal grief rituals are those loving activities that help us remember our loved ones and give us a sense of connectedness, healing, and peace. 

  • Grief and loss
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Martin Connah with his memorial ring

Grandparents – among the forgotten grievers

Some words by Certified Thanatologist, author, and lecturer Helen Fitzgerald.

  • Grief and loss
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Grief illustration

Martin misses his wife “each and every day”

Martin supported and cared for her during her final 10 years, following her diagnosis with myeloma – a journey that was challenging and long.

  • Grief and loss
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Linda and Martin Connah with ice cream

Jeannie’s lucky and blessed to have not one but two happy marriages

Jeannie Chitty’s first husband, Kevin Mawson, had always said, “when I go, don’t forget me but get on with your life”. 

  • Grief and loss
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Jean Chitty on the Ross River Dam

COVID-19 risk reduced further for residents

Funding from The Honda Foundation has gone towards purchasing HEPA air purifiers in Leukaemia Foundation accommodation facilities.

  • Our supporters
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An accommodation resident relaxes in a living room, with a large HEPA filter unit nearby

Jane’s had three different cancer diagnoses in two years

First diagnosed with breast cancer, Jane Alder was then told she had MDS, and leukaemia.

  • Acute myeloid leukaemia
  • Myelodysplastic syndromes
  • Treatments and side-effects
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Jane Alder and Violet

Lots of work is needed to improve long-term outcomes for MDS

Professor John Pimanda breaks down why treating for MDS is slightly different to the treatment for most cancers.

  • Myelodysplastic syndromes
  • Treatments and side-effects
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Professor John Pimanda

Esther considers herself “very lucky” she was diagnosed early

Only three weeks before her diagnosis of non-hodgkin lypmphoma, Esther flew back to China to be a bridesmaid at her best friend's wedding.

  • Non-Hodgkin lymphoma
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Esther Xu

Support for submission to MSAC for genetic testing for blood cancers

In November 2021, the Leukaemia Foundation provided consumer comments in relation to the Medical Services Advisory Committee (MSAC) application.

  • Advocacy and policy
  • Research
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Charlie’s blood cancer went undiagnosed for a decade

Charlie Nicholson's blood test anomalies were missed.

  • Delayed diagnosis
  • Myelofibrosis
  • Polycythemia vera
  • Set the Standard
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aldinga Beach woman Charlie Nicolson had a delayed blood cancer diagnosis

Katrina’s five-year delay in diagnosis was followed by a further wait for access to treatment.

Katrina Richards struggled to receive her blood cancer diagnosis.

  • Treatments and side-effects
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Katrina Richards sits alone in her home.