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Stories

From real patient stories to tips on living well, hear firsthand from people who have faced blood cancer.

We’ve also got the latest research and advocacy news, as well as stories from our wonderful fundraisers and donors. You can subscribe to our e-newsletters and event news here.

Magrolimab – potential new treatment for newly diagnosed MDS

The treatment for newly diagnosed MDS will be available “very soon” to Australians in a clinical trial.

  • Myelodysplastic syndromes
  • Research
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Professor Andrew Wei

Familial research key to blood cancer prevention strategy

The Australian Familial Haematological Cancer Study (AFHCS) leads the world in the field and has a research cohort of more than 200 families with a history of blood cancer.

  • Acute myeloid leukaemia
  • Myelodysplastic syndromes
  • Research
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AFHCS research team

Christine has a rare genetic predisposition to MDS

After losing her dad to MDS, and her brother’s diagnosis just a month before hers, Christine Heath’s family underwent genetic testing to understand whether their MDS could be hereditary.  

  • Myelodysplastic syndromes
  • Myeloproliferative neoplasms
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Christine and Greg at Ashleigh's end of year school service Nov 2018

MDS-survivor, Danny now dedicated to raising awareness

This MDS World Awareness Day, Danny Palmer will celebrate achieving remission after undergoing a life-saving transplant earlier this year. He’s now committed to raising awareness of the many different blood cancers, encouraging others to donate blood and plasma, as well as fundraise in support of the community.

  • Myelodysplastic syndromes
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Danny Palmer

PhD scholarships focused on improving outcomes for people with AML and MPN

Basit Salik, Dr Jamie Kuzich and Dr Julian Grabek are the successful recipients of the 2021 PhD Scholarships.

  • Acute myeloid leukaemia
  • Myeloproliferative neoplasms
  • Research
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Illustration of a microscope, test tubes, and clipboard

Chronic blood cancer diagnosis sparks Mel’s passion for awareness

Since receiving a shock CML diagnosis in July 2020, Mel Harris has learnt quickly that the so-called ‘invisible cancer’ can have everyday impacts beyond what many would expect.

  • Chronic myeloid leukaemia
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Mel Harris

Oren fast-tracked to CAR T-cell therapy for rare Ph-like ALL

Sports-lover Oren was only the sixth child in Australia to receive CAR T-cell treatment.

  • Acute lymphoblastic leukaemia
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Oren stands outside, smiling

Same cancer, same drug but our access to treatment was anything but consistent

They’re three women all battling an incurable type of blood cancer, but Neda, Nikki and Shirley have felt hardship in very different ways.

  • Myeloma
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Neda Masters

I needed better information about clinical trial options

Matthew Fogarty has spent almost five years regularly travelling to the other side of the world to collect the handful of pills that keep his blood cancer at bay.

  • Other blood cancers
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Matthew Fogarty

I took control after becoming adrift in the system

The long wait for a diagnosis took its toll on Bronwyn Bisley, but her biggest challenges lay ahead as the information she desperately needed dried up.

  • Hodgkin lymphoma
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Bronwyn Bisley

Personalised cellular therapy gives Hunter a future

A cutting-edge cellular therapy, made possible by breakthrough research, has given seven-year-old Hunter hope for a brighter future.

  • Acute lymphoblastic leukaemia
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The Madden Family

Drug discovery has remarkable potential for high-risk childhood leukaemia

Dr Michelle Henderson's research is laying the groundwork to develop a promising new therapy for infant ALL.

  • Acute lymphoblastic leukaemia
  • Research
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Dr Michelle Henderson in the lab

From PhD in Melbourne to postdoc in New York

New York-based, Aussie researcher Matt Witkowski has his sights set on improving the effectiveness of CAR T-cell therapy.

  • Acute lymphoblastic leukaemia
  • Research
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Matthew Witkowski

Daratumumab – first new myeloma agent PBAC-recommended in years

The drug has received a positive recommendation for PBS listing.

  • Advocacy and policy
  • Myeloma
  • Treatments and side-effects
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Darzalex

Shirley’s “so well” on her latest treatment – daratumumab

Shirley Irwin has had radiotherapy and two transplants, had surgery, five different lines of treatment, and relapsed twice.

  • Myeloma
  • Treatments and side-effects
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Bruce and Shirley Irwin on the beach

Research aims to improve QOL by decreasing treatment toxicity

Kate Vandyke is leading exciting research examining whether a new inhibitor can be used to prepare myeloma patients for therapies and increase their efficacy.

  • Myeloma
  • Research
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Kate van Dyke

Navigating childhood blood cancer during a pandemic

Archer spent nine months, hundreds of kilometres from home and across state borders, undergoing life-saving blood cancer treatment during the COVID-19 pandemic. 

  • Acute lymphoblastic leukaemia
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Archer Bermingham

Baby Daisy spends first year conquering blood cancer

To mark September’s Childhood Cancer Awareness Month, we’re sharing the inspiring stories of little warriors like Daisy, who was diagnosed with an aggressive blood cancer at just four months old.

  • Acute lymphoblastic leukaemia
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Daisy Neve

One in 110,000: Neda’s Story

Neda has experienced first-hand the benefit of Leukaemia Foundation support services - all thanks to the generosity of Australians.

  • Myeloma
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Woman in a headscarf smiling at the camera

Thank you for being there when it matters most

Leukaemia Foundation Chairman, Dr Carrie Hillyard, has a special message for our supporters.

  • Our supporters
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Carrie Hillyard receiving AM