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Stories

From real patient stories to tips on living well, hear firsthand from people who have faced blood cancer.

We’ve also got the latest research and advocacy news, as well as stories from our wonderful fundraisers and donors. You can subscribe to our e-newsletters and event news here.

It took the blood of 100 strangers to save my son

To mark World Blood Donor Day on June 14, Jessica Lake shares how her now six-year-old son, Larry, depended on the kindness of blood donors for over a year after being diagnosed with the rare blood disease, aplastic anaemia. 

  • Blood disorders
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Larry Tan_feature

Diagnosed with MDS, AML, then MDS again

Tony Wakely’s diagnosis with MDS quickly transformed to AML, which he beat with a transplant. But a year later, he was shocked to find out his MDS had come back.

  • Acute myeloid leukaemia
  • Myelodysplastic syndromes
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Tony and Karen Wakely

International precision medicine clinical trials recruiting

Two new international clinical trials are expected to improve access to new therapies for Australians with MDS as part of the Leukaemia Foundation’s Trials Enabling Program (TEP).

  • Myelodysplastic syndromes
  • Research
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AMLM23 Principal Investigator, Professor Paula Marlton

PBAC update on new MDS & CMML treatment

The Leukaemia Foundation provided consumer comments to the Pharmaceutical Benefits Advisory Committee (PBAC) in relation to Otsuka Australia Pharmaceutical’s resubmission for decitabine and cedazuridine (Inqovi®) for high-risk MDS and CMML.

  • Myelodysplastic syndromes
  • Treatments and side-effects
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CMML under microscope

Aim of first-ever CMML study – to improve survival

A lot of ‘world firsts’ are involved in an Australian clinical trial that is taking a precision medicine approach to treating CMML, a neglected and serious rare blood cancer that is poorly understood.

  • Myelodysplastic syndromes
  • Myeloproliferative neoplasms
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Dan Thomas and CMML trial team

Expert Series interview: Dr Devendra Hiwase – more research needed for greater insight into MDS

Dr Devendra Hiwase thinks every patient with this rare form of blood cancer should have molecular profiling.

  • Myelodysplastic syndromes
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Dr Devendra Hiwase

Blood Wars: My body’s rebellion

Tony Wakely shares his personal journal, where he documents his experiences with MDS and AML.

  • Acute myeloid leukaemia
  • Myelodysplastic syndromes
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Tony Wakely in hospital

Steph’s in complete remission despite her delayed HL diagnosis

After a misdiagnosis and delayed biopsy, Steph Eliot was finally diagnosed with Stage 2 Hodgkin lymphoma (HL).

  • Hodgkin lymphoma
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Steph Eliot at Parliament House pre-diagnosis

Improving infection prevention with drug optimisation

Julian Lindsay’s goal is to set up an international study aimed at improving survival and quality of life through drug optimisation.

  • Hodgkin lymphoma
  • Non-Hodgkin lymphoma
  • Research
  • Treatments and side-effects
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Dr Julian Lindsay

Study examines COVID-19 vaccine response in low-grade lymphoma

An Australian study will examine the immune response to the COVID-19 vaccine in patients with the low-grade non-Hodgkin lymphomas.

  • Non-Hodgkin lymphoma
  • Research
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Concord research group

PBAC to consider three lymphoma drugs

  • Hodgkin lymphoma
  • Non-Hodgkin lymphoma
  • Treatments and side-effects
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Acalabrutinib image

Expert Series interview: Associate Professor Michael Dickinson discusses CAR T-cell therapy

Associate Professor Michael Dickinson says CAR T-cell therapy is a 'revolutionary step forward'.

  • Hodgkin lymphoma
  • Non-Hodgkin lymphoma
  • Research
  • Treatments and side-effects
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A/Prof. Dickinson enjoying gelato with his daughters in Melbourne

Part Four: Fight for the ones you love and yourself

In her own words, Rowena McLean shares her harrowing four-and-a-half-year blood cancer journey in the lead up to World Blood Cancer Day, 28 May 2021.

  • Acute myeloid leukaemia
Read more
Mind over matter_feature

Reconciliation Week

We stand with Indigenous Australians to close the gap in health. We know we need to do better for our First Nations people living with blood cancer.

  • Acute lymphoblastic leukaemia
  • Non-Hodgkin lymphoma
  • Other blood cancers
  • Support services
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Artwork created by Reconciliation Australia to mark Reconciliation Week

Part Three: “If your daughter could save your life…would you ask her?”

In her own words, Rowena McLean shares her harrowing four-and-a-half-year blood cancer journey in the lead up to World Blood Cancer Day, 28 May 2021.

  • Acute myeloid leukaemia
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Rowena and ally_feature

Part Two: Needing some magic from ‘Mr Potter’  

In her own words, Rowena McLean shares her harrowing four-and-a-half-year blood cancer journey in the lead up to World Blood Cancer Day, 28 May 2021.

  • Acute myeloid leukaemia
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Rowena_feature image 2

Childhood blood cancer through a mother’s eyes

This Mother’s Day, and every day, we recognise the incredible mothers and mother-figures within our community. One of these mums is Andrea Houston whose four-year-old daughter, Emily, is currently battling an aggressive blood cancer.

  • Acute lymphoblastic leukaemia
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Emily Houston_feature

Part One: Boxing Day, bloody noses and a burst appendix

  • Acute myeloid leukaemia
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Rowena feature

Faye’s myeloma journey: “Cancer? What cancer?”

To mark Myeloma Awareness Month, Faye Johnsen shares her inspiring approach to living with the incurable blood cancer.

  • Myeloma
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Faye Johnsen

Janice has “been just so lucky” over the 12 years she’s had myeloma

Janice says she "wouldn't be here" had she been diagnosed two years earlier.

  • Myeloma
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Jan Watt at her 50th