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Stories

From real patient stories to tips on living well, hear firsthand from people who have faced blood cancer.

We’ve also got the latest research and advocacy news, as well as stories from our wonderful fundraisers and donors. You can subscribe to our e-newsletters and event news here.

Navigating a rare blood disease as a mother of five: Fiona’s story

  • Myelodysplastic syndromes
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Fiona McWhirter

Expert Series: Associate Professor Nada Hamad on the importance of clinical trials

When talking to her patients, clinical haematologist and researcher Associate Professor Nada Hamad always considers their eligibility for a clinical trial. 

  • Chronic lymphocytic leukaemia
  • Interviews with experts
  • Research
  • Treatments and side-effects
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Associate Professor Nada Hamad - clinical haematologist and researcher

Dealing with the emotions of clearing out a home after a loved one dies

Feelings of helplessness and confusion are common after losing a loved one and everything you need to do can be overwhelming. 

  • Grief and loss
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Clearing out the house

Learning to live around our grief

Grief is very much part of our lives - it’s not something separate and it's not just about dying or death, it's around endings, according to psychotherapist, Dr Stephanie Thompson.  

  • Grief and loss
  • Treatments and side-effects
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Dr Stephanie Thompson

Expert Series: the healing power of music therapy

“Music is very much part of our lives” and that's why it's such a useful and effective tool in therapy, according to Tasmanian registered music therapist, Dr Stephanie Thompson. 

  • Grief and loss
  • Treatments and side-effects
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Dr Stephanie Thompson

Lorie and Troy were on their way to the GP for results – hours later Lorie was in ICU

In February 2021, Lorie Sarson was diagnosed with anaplastic large cell lymphoma (ALCL), putting her and husband Troy in immediate financial distress due to treatment and transport costs.

  • Non-Hodgkin lymphoma
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Lorie and Troy

In her grief, Nerys is finding “little bits of joy” again

For Nerys Welch, “grief sucks” in so many ways. And she says, “it never goes away”. 

  • Acute lymphoblastic leukaemia
  • Grief and loss
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Nerys, Richard and the kids at their house

Increased melanoma risk in CLL patients means regular skin checks critical

People with chronic lymphocytic leukaemia (CLL) have a sizeable 600% higher risk of the most dangerous form of skin cancer, melanoma, researchers have found.

  • Chronic lymphocytic leukaemia
  • Treatments and side-effects
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Skin check

In My Own Words: Patrick Griffin was told he had months to live after a third cancer diagnosis

Patrick Griffin's overcame prostate cancer, then lymphoma, before being diagnosed with CLL.

  • Chronic lymphocytic leukaemia
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Patrick Griffin and his CLL medication

Being immunocompromised makes CLL patients one of the most vulnerable patient groups

Clinical haematologist and researcher, Associate Professor Nada Hamad discusses the latest on CLL.

  • Chronic lymphocytic leukaemia
  • Treatments and side-effects
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Diana Brown

Women in haematology: spotlight on Associate Professor Nada Hamad

Getting to know the clinical haematologist and researcher,

  • Chronic lymphocytic leukaemia
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Associate Professor Nada Hamad - clinical haematologist and researcher

Making decisions about blood cancer and your fertility

Clinical psychologist Ela Sexton advises on a few steps you can take when considering blood cancer and fertility planning.

  • Lifestyle and living well
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Psychologist Ella Sexton

Fertility, family and blood cancer

Sage and Sophie had to quickly make decisions about fertility and whether to start their respective families in the future – all within days of receiving a blood cancer diagnosis.

  • Acute lymphoblastic leukaemia
  • Acute myeloid leukaemia
  • Lifestyle and living well
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Sage and Milly holding baby Ziggy

Talking Blood Cancer: 2022 wrap up

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Talking Blood Cancer

From a cattle farmer and mother of three to an AML diagnosis: Regina’s story

  • Acute myeloid leukaemia
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Talking Blood Cancer

Clinical trial for high-risk MDS tests new drug combination 

A Phase I investigator-driven clinical trial, which is ready to recruit its first participant, gives Australian patients with high-risk MDS access to two new oral drugs. 

  • Clinical trials
  • Myelodysplastic syndromes
  • Research
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Don had a stem cell transplant at 70 and says “exercise helped”

Don Hayes had an allogeneic stem cell transplant days before his 71st birthday.

  • Myelodysplastic syndromes
  • Research
  • Treatments and side-effects
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Supporting the advancement of science for Waldenström’s macroglobulinaemia

Research to further scientific knowledge of the cause and treatment of the uncommon type of blood cancer, Waldenström’s macroglobulinaemia (WM), is being co-funded by the Leukaemia Foundation. 

  • Other blood cancers
  • Research
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Graeme’s amazing CAR T-cell therapy story – relapse to remission in 28 days

Just 28 days after Graeme Ardern had CAR T-cell therapy, he received the most amazing news - he’d had a complete metabolic response. 

  • Clinical trials
  • Hodgkin lymphoma
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Expert Series: physiotherapist Julie Allen works with cancer patients to improve quality of life and survival

When Julie Allen was diagnosed with lymphoma as a young professional mum, she thought she'd go straight back to work after treatment. But afterwards she literally felt “stripped bare”. 

  • Interviews with experts
  • Non-Hodgkin lymphoma
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