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Stories

From real patient stories to tips on living well, hear firsthand from people who have faced blood cancer.

We’ve also got the latest research and advocacy news, as well as stories from our wonderful fundraisers and donors. You can subscribe to our e-newsletters and event news here.

The Leukaemia Foundation welcomes Australian Government decision to ban using adverse genetic testing results in life insurance

The Leukaemia Foundation welcomes the Australian Government’s decision to ban the use of adverse genetic testing results in life insurance.

  • Advocacy and policy
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World Marrow Donor Day 2024

Leukaemia Foundation staff come together to raise awareness for the Australian Bone Marrow Donor Registry (ABMDR), and the need for more Australians to register

  • Acute lymphoblastic leukaemia
  • Advocacy and policy
  • Treatments and side-effects
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‘Made me the person I am today’

After living with the disease for almost the entirety of her teenage and adult life, 23-year-old Siobhan Hoy is no stranger to the long-term side effects of blood cancer.

  • Treatments and side-effects
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Talking Blood Cancer: Regional Resilience

Michael Burridge candidly shares his experience living with blood cancer and the emotional and physical journey following his diagnosis with myeloma.

  • Myeloma
  • Support services
  • Treatments and side-effects
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From nurse to patient

Rosie Proctor had just moved in with her partner and was living out her dream career as a nurse on the Gold Coast. Then a shock blood cancer diagnosis turned her from caregiver to patient at the very hospital where she worked.

  • Acute myeloid leukaemia
  • Treatments and side-effects
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Talking Blood Cancer: From Leukaemia Diagnosis to Finding Hope and Humor

Siobhan Hoy discusses her experiences living with blood cancer and the aftermath of her treatment, including the challenges she faced, such as the development of graft versus host disease.

  • Acute lymphoblastic leukaemia
  • Support services
  • Treatments and side-effects
Read more

Talking Blood Cancer: From Patient to Nurse

Rosie Proctor recounts her journey with acute myeloid leukaemia, including pain in her hip and a high fever, leading to her diagnosis, on the Talking Blood Cancer podcast by the Leukaemia Foundation.

  • Acute myeloid leukaemia
  • Support services
  • Treatments and side-effects
Read more

Research news – August 2024

Chimeric antigen receptor (CAR) T-cell therapy is a revolutionary new type of treatment that ‘trains’ a patient’s own immune cells to seek out and kill cancer.

  • Research
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“Keep smiling”

After nearly seven years in remission, Sage Wilder reflects on the power of positivity, finding love, and becoming a father.

  • Acute lymphoblastic leukaemia
  • Treatments and side-effects
Read more

Talking Blood Cancer: Compassion, Humour, and Care

Dr Ralph McConaghy discusses the important topic of having early conversations about serious illness and end-of-life decisions on the Talking Blood Cancer podcast by the Leukaemia Foundation.

  • Support services
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It took six months to diagnose Kerry’s blood cancer – sadly, she’s not alone

Kerry Boyenga was diagnosed with Australia’s most common type of blood cancer. But she said it wasn’t even on her GP’s radar.

  • Non-Hodgkin lymphoma
  • Treatments and side-effects
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Shock diagnosis, newfound willpower

Kish Modi is facing the momentous task of managing a blood cancer diagnosis. But even with so much on his plate, he’s somehow finding every way in his power to raise awareness.

  • Acute myeloid leukaemia
  • Our supporters
  • Treatments and side-effects
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Carlia Van Den Hoek is living proof of the barriers that many face when diagnosed with blood cancer

Despite advancements in care, there remains a troubling cancer health divide affecting many different communities across the country. A divide that 32-year-old Carlia Van Den Hoek knows all too well.

  • Diffuse large B-cell lymphoma
  • Treatments and side-effects
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Talking Blood Cancer: Overcoming ALL

Rugby player Sage shares his ALL diagnosis, treatment journey, and recovery mindset on the Talking Blood Cancer podcast by the Leukaemia Foundation.

  • Acute lymphoblastic leukaemia
  • Support services
  • Treatments and side-effects
Read more

“Live life to the fullest”: Josh Gourlay opens up about returning to work and new beginnings after blood cancer

While a shock blood cancer diagnosis put 34-year-old Josh Gourlay’s life temporarily on hold, it also presented him with a new mindset, and new opportunities.

  • Acute lymphoblastic leukaemia
  • Treatments and side-effects
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Talking Blood Cancer: Estate planning and medical directives

Discover estate planning essentials for blood cancer patients with Eleanor Davis on the Talking Blood Cancer podcast by the Leukaemia Foundation.

  • Support services
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Running for a Cause: Cal Gates’ Journey from Newcastle to Sydney on foot in one weekend

In the face of adversity some people rise to the occasion with remarkable strength and determination. Cal Gates is one such individual. His story is one of inspiration, resilience, and a deep commitment to making a difference in the fight against blood cancer.

  • Our supporters
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World Blood Cancer Day 2024

Discover more about the latest developments in stem cell transplants.

  • bone marrow transplant
  • Research
  • Treatments and side-effects
Read more

Kish Modi’s AML journey and GoFundMe fundraiser

My name is Kish, I’m a 35-year-old who was diagnosed with acute myeloid leukaemia (AML) in October last year. There were no warning signs – things just hit, very suddenly.

  • Acute myeloid leukaemia
  • bone marrow transplant
  • chemotherapy
  • Our supporters
  • Treatments and side-effects
Read more

Feeling tired all the time because of cancer

Discover how cancer fatigue impacts daily life and learn ways to manage feeling tired all the time due to cancer. Explore Neda's inspiring story.

  • chemotherapy
  • Myeloma
  • Treatments and side-effects
Read more


Last updated on February 9th, 2023

Developed by the Leukaemia Foundation in consultation with people living with a blood cancer, Leukaemia Foundation support staff, haematology nursing staff and/or Australian clinical haematologists. This content is provided for information purposes only and we urge you to always seek advice from a registered health care professional for diagnosis, treatment and answers to your medical questions, including the suitability of a particular therapy, service, product or treatment in your circumstances. The Leukaemia Foundation shall not bear any liability for any person relying on the materials contained on this website.