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Stories

From real patient stories to tips on living well, hear firsthand from people who have faced blood cancer.

We’ve also got the latest research and advocacy news, as well as stories from our wonderful fundraisers and donors. You can subscribe to our e-newsletters and event news here.

A positive mindset and returning to work helped Harry!

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Talking Blood Cancer with Harrison Thompson

Giles Purbrick was diagnosed with blood cancer, days after becoming a father

>In January 2020, Giles and wife Jacqui welcomed their baby daughter into the world. But just days later, Giles was hit with a shock blood cancer diagnosis that turned everything on its head.

  • Lifestyle and living well
  • Research
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Giles Purbrick and his wife

AML survivor Sophie Gray shares how complementary therapies gave her the edge

Sophie was diagnosed with AML in 2019, aged 29. She had a stem cell transplant later the same year from an unrelated donor and has been in remission ever since. After leaning on her yoga and mindfulness practice heavily through her recovery, Sophie underwent her yoga teacher training and teaches in Adelaide. In this article the Leukaemia Foundation asked Sophie some questions about her experience with complementary therapies.

  • Lifestyle and living well
  • Research
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Sophie Gray using Complimentary Therapies

Professor David Joske talks to the Leukaemia Foundation about Complementary therapies

David Joske is a Clinical Haematologist at Sir Charles Gairdner Hospital in Perth Western Australia. He was Head of Department 1994 - 2012 and a Medical Co-Director 2017-2021. In this story David Joske talks to the Leukaemia Foundation about Complementary therapies.

  • Lifestyle and living well
  • Research
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Professor David Joske

Lisa Smith CEO of Australian Bone Marrow Donor Registry

  • Interviews with experts
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Lisa Smith, CEO - Australian Bone Marrow Donor Registry (ABMDR)

Rare brain lymphoma needs more research and clinical trials

Access to clinical trials of novel treatments, including immune checkpoint inhibitors and CAR T-cell therapy, could be a game changer for these patients, according to Dr Colm Keane. He is a clinical haematologist at the Princess Alexandra Hospital in Brisbane and a brain lymphoma researcher at the University of Queensland's Frazer Institute.  

  • Clinical trials
  • Research
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Dr Colm Keane

Expert Series: Dr Sun Loo on measurable residual disease in remission and relapse

For Dr Sun Loo, being part of an innovative clinical trial is a perfect fit. It furthers research into her field of interest – measurable residual disease (MRD), and the blood cancer she is passionate about – acute myeloid leukaemia (AML).

  • Interviews with experts
  • Research
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Clinical haematologist and researcher, Dr Sun Loo

Spotlight on Professor Andrew Wei and the importance of clinical trials

Leukaemia researcher, Professor Andrew Wei hopes that clinical trials in the future will be routinely based on a new strategy of targeting measurable residual disease (MRD), commencing patients on treatment before clinical relapse.

  • Interviews with experts
  • Research
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Professor Andrew Wei, INTERCEPT clinical trial Chief Investigator

Expert Series: Professor Tenen on his lifelong search for a cure for cancer

Professor Daniel Tenen, who has devoted his research career to searching for a cure for cancer, has found an “ideal target”. It’s a gene called SALL4.

  • Interviews with experts
  • Research
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Professor Dan Tenen

Blood cancer hasn’t stopped Lyndell travelling for work and leisure

One of the first things Lyndell Wills did after being diagnosed with a blood cancer was to plan her dream holiday to South Africa. 

  • Lifestyle and living well
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Lyndell Wills at Macchu Pichu

Addressing blood cancer challenges and improving patient outcomes

This issue of preventable deaths is now being addressed along with other priority actions around national standards of care and consistent access to clinical best practice.

  • Advocacy and policy
  • Research
  • Treatments and side-effects
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Article #3 Tile

Referral to a haematologist takes 2+ months for 13% of blood cancer patients

A timely and accurate blood cancer diagnosis is critical to clinical best practice.

  • Advocacy and policy
  • Treatments and side-effects
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Article #2 Tile

Access to best practice needed to reduce blood cancer mortality

Patients understand that clinical best practice care begins with an accurate and timely diagnosis.

  • Advocacy and policy
  • AML
  • Myeloma
  • Treatments and side-effects
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Access to best practice needed to reduce blood cancer mortality

Justine Brennan on Blood Cancer Support Coordinators’ return to hospitals

When a patient is diagnosed with blood cancer, both the initial diagnosis and the resulting treatment and changes to daily life can feel overwhelming.

  • Support services
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HCP_Illustration_02

15 minutes with haematology nurse Carmel Woodrow

  • Interviews with experts
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Talking Blood Cancer with Carmel Woodrow

Jennifer was diagnosed with myeloma at 27 years old

  • Myeloma
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Jennifer Marx
Support -

Our Education and Support Program is here to help – and empower

The Leukaemia Foundation works closely with healthcare professionals to connect people living with blood cancer with our services.

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blood-cancer-emotional-support-services

Navigating a rare blood disease as a mother of five: Fiona’s story

  • Myelodysplastic syndromes
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Fiona McWhirter

Expert Series: Associate Professor Nada Hamad on the importance of clinical trials

When talking to her patients, clinical haematologist and researcher Associate Professor Nada Hamad always considers their eligibility for a clinical trial. 

  • Chronic lymphocytic leukaemia
  • Interviews with experts
  • Research
  • Treatments and side-effects
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Associate Professor Nada Hamad - clinical haematologist and researcher

Dealing with the emotions of clearing out a home after a loved one dies

Feelings of helplessness and confusion are common after losing a loved one and everything you need to do can be overwhelming. 

  • Grief and loss
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Clearing out the house