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Stories

From real patient stories to tips on living well, hear firsthand from people who have faced blood cancer.

We’ve also got the latest research and advocacy news, as well as stories from our wonderful fundraisers and donors. You can subscribe to our e-newsletters and event news here.

Venetoclax moves us closer towards zero lives lost to blood cancer

  • Advocacy and policy
  • Research
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Treatment

Expert interview: Professor Andrew Perkins on MPN

It’s emerging in all cancers, but particularly in the MPNs, that “genomics is everything” according to Professor Andrew Perkins, an expert in myeloproliferative neoplasms (MPN).

  • Myeloproliferative neoplasms
  • Research
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Andrew Perkins and grandson Harry

Sharon’s 30 years living with MPN

Diagnosed with PV and ET at the age of 18, Sharon was having treatment when she fell pregnant with the first of her three healthy children in 2000.

  • Myeloproliferative neoplasms
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Sharon MacIntyre at the market

Expert Series interview with Noemi Horvath on amyloidosis

Noemi Horvath is a highly reputed consultant haematologist at Royal Adelaide Hospital who has dedicated most of her life to her work and her special interest has long been amyloidosis.

  • Amyloidosis
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Dr Noemi Horvath with Dr Simon Gibbs, Assoc. Prof. Peter Mollee, the evening’s entertainer, Dr Fiona Kwok, Noemi Horvath, and Pat Neely

Sue’s living with the uncertainty she’s counselled others about

When Sue was diagnosed with a blood cancer, she found herself living through experiences she had discussed in one of her talks, This is Not the Life I Ordered.

  • Amyloidosis
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Sue McConaghey at the Chicago Art Gallery

PBAC considering daratumumab for newly diagnosed AL amyloidosis

Daratumumab (Darzalex®) could be the first ever therapy to be approved in Australia for AL amyloidosis.

  • Amyloidosis
  • Treatments and side-effects
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Daratumumab

David’s in remission after compassionate drug access

David’s AL amyloidosis is in remission following compassionate access to daratumumab.

  • Amyloidosis
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David and Kathy Boyle with Sam

New international trial for amyloidosis

In a first-ever Australian-French collaboration, an exciting new clinical trial, due to open before Christmas, will give Australians with relapsed or refractory AL amyloidosis access to a new drug combination. 

  • Amyloidosis
  • Treatments and side-effects
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Illustration of various treatments, pills, medicines

Helen’s steps to a gift in Will

Helen has no idea how many kilometres she walked with her beloved pooch Prinnie for over 15 years collecting for the Leukaemia Foundation Doorknock campaign. But she does know every step was worth it to help save the lives of children with blood cancer – like her young friend, Rachel, who was diagnosed with leukaemia in 1991.

  • Acute lymphoblastic leukaemia
  • Gift in Will
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Will’s first Father’s Day after beating blood cancer

After beating blood cancer and becoming a first-time dad, Will decided to take care of his mental health.

  • Acute lymphoblastic leukaemia
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Will with his wife Sarah, holding their son Leo

The scary reality: blood cancer can affect anyone at any time

When Hayley Bugno was diagnosed with blood cancer only a year after having her third baby, she was confronted with the ‘scary reality’ that the disease does not discriminate and can strike when least expected.  

  • Acute myeloid leukaemia
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Hayley Bugno - feature

Rare blood cancer claims the life of ‘Island Child’ Benji 

Living a peaceful and idyllic life on tropical Christmas Island, the Kentwell family could never have anticipated the pain blood cancer could bring to their lives.  

  • Other blood cancers
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Benji Kentwell - feature

Venetoclax received PBAC recommendation for AML

The 'miracle drug' was among eight blood cancer treatments recommended by the PBAC at its July 2021 meeting.

  • Acute myeloid leukaemia
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Expert Series: Dr Ilaria Pagani talks treatment-free remission in CML

Dr Pagani has a vision for a personalised approach to treatment-free remission in CML

  • Chronic myeloid leukaemia
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Dr Ilaria Pagani in the lab

Heather’s in treatment-free remission

Heather Jenkins was one of the first Australians to go on a clinical trial for the first targeted therapy for chronic myeloid leukaemia (CML).

  • Chronic myeloid leukaemia
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Heather Jenkins in 2021

Revised AML, DLBCL and HL Optimal Care Pathways released

Newly revised optimal care pathways (OCPs) provide best practice information for the treatment and care of people living with acute myeloid leukaemia (AML), and diffuse large B-cell lymphoma (DLBCL) and Hodgkin lymphoma (HL). 

  • Acute myeloid leukaemia
  • Chronic myeloid leukaemia
  • Hodgkin lymphoma
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Blood-cancer-research

Diane didn’t know leukaemia was a blood cancer – “I thought it’s what little kids get”

In this honest, humourous, and heartfelt first-person narrative, Diane Autio shares her experiences of being diagnosed with acute myeloid leukaemia (AML).  

  • Acute myeloid leukaemia
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Diane with her dog Ollie's nose

Expert Series: Dr Chun Fong on finding the keys to unlock AML

Dr Chun Fong believes that testing for measurable residual disease (MRD) is part of the answer.

  • Acute myeloid leukaemia
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Dr Chun Fong at the pub

New trial aimed at keeping people with AML in remission

A new platform trial, a world first, could have transformative implications for people with resistant AML. 

  • Acute myeloid leukaemia
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Associate Professor Andrew Wei in the lab

Nick’s double blood cancer diagnosis and regaining hope

Diagnosed with two blood cancers, Nick's world changed instantly. Then transplant complications challenged him in ways he didn't expect.

  • Acute lymphoblastic leukaemia
  • Chronic myeloid leukaemia
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Nick holding a bag of stem cells