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Stories

From real patient stories to tips on living well, hear firsthand from people who have faced blood cancer.

We’ve also got the latest research and advocacy news, as well as stories from our wonderful fundraisers and donors. You can subscribe to our e-newsletters and event news here.

Helen’s steps to a gift in Will

Helen has no idea how many kilometres she walked with her beloved pooch Prinnie for over 15 years collecting for the Leukaemia Foundation Doorknock campaign. But she does know every step was worth it to help save the lives of children with blood cancer – like her young friend, Rachel, who was diagnosed with leukaemia in 1991.

  • Acute lymphoblastic leukaemia
  • Gift in Will
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Will’s first Father’s Day after beating blood cancer

After beating blood cancer and becoming a first-time dad, Will decided to take care of his mental health.

  • Acute lymphoblastic leukaemia
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Will with his wife Sarah, holding their son Leo

The scary reality: blood cancer can affect anyone at any time

When Hayley Bugno was diagnosed with blood cancer only a year after having her third baby, she was confronted with the ‘scary reality’ that the disease does not discriminate and can strike when least expected.  

  • Acute myeloid leukaemia
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Hayley Bugno - feature

Rare blood cancer claims the life of ‘Island Child’ Benji 

Living a peaceful and idyllic life on tropical Christmas Island, the Kentwell family could never have anticipated the pain blood cancer could bring to their lives.  

  • Other blood cancers
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Benji Kentwell - feature

Venetoclax received PBAC recommendation for AML

The 'miracle drug' was among eight blood cancer treatments recommended by the PBAC at its July 2021 meeting.

  • Acute myeloid leukaemia
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Expert Series: Dr Ilaria Pagani talks treatment-free remission in CML

Dr Pagani has a vision for a personalised approach to treatment-free remission in CML

  • Chronic myeloid leukaemia
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Dr Ilaria Pagani in the lab

Heather’s in treatment-free remission

Heather Jenkins was one of the first Australians to go on a clinical trial for the first targeted therapy for chronic myeloid leukaemia (CML).

  • Chronic myeloid leukaemia
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Heather Jenkins in 2021

Revised AML, DLBCL and HL Optimal Care Pathways released

Newly revised optimal care pathways (OCPs) provide best practice information for the treatment and care of people living with acute myeloid leukaemia (AML), and diffuse large B-cell lymphoma (DLBCL) and Hodgkin lymphoma (HL). 

  • Acute myeloid leukaemia
  • Chronic myeloid leukaemia
  • Hodgkin lymphoma
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Blood-cancer-research

Diane didn’t know leukaemia was a blood cancer – “I thought it’s what little kids get”

In this honest, humourous, and heartfelt first-person narrative, Diane Autio shares her experiences of being diagnosed with acute myeloid leukaemia (AML).  

  • Acute myeloid leukaemia
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Diane with her dog Ollie's nose

Expert Series: Dr Chun Fong on finding the keys to unlock AML

Dr Chun Fong believes that testing for measurable residual disease (MRD) is part of the answer.

  • Acute myeloid leukaemia
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Dr Chun Fong at the pub

New trial aimed at keeping people with AML in remission

A new platform trial, a world first, could have transformative implications for people with resistant AML. 

  • Acute myeloid leukaemia
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Associate Professor Andrew Wei in the lab

Nick’s double blood cancer diagnosis and regaining hope

Diagnosed with two blood cancers, Nick's world changed instantly. Then transplant complications challenged him in ways he didn't expect.

  • Acute lymphoblastic leukaemia
  • Chronic myeloid leukaemia
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Nick holding a bag of stem cells

Edward’s legacy secured with gift in Will 

Edward Rhoades and his mum, Jan, knew they wanted to give others impacted by blood cancer a brighter future after he suffered from the debilitating side-effects of a stem cell transplant, to which he eventually lost his life.  

  • Acute lymphoblastic leukaemia
  • Gift in Will
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Edward Rhoades - Feature

“CAR-T could be my cure,” says Deborah

Delighted, really relieved, and excited was Deborah Sims’ response to her nine-month review following CAR T-cell therapy last year. 

  • Chronic lymphocytic leukaemia
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When the Sims family returned from the UK in March 2016

Yael’s 20 years with CLL have been “as good as it could be”

Yael Morris was very young – only 34 years old, 28 weeks pregnant, and living in Darwin – when she was diagnosed with CLL 20 years ago. 

  • Chronic lymphocytic leukaemia
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Yael and Noa playing in the leaves

Expert Series: Dr Piers Blombery on genomic testing

Dr Piers Blombery explains the basics of molecular testing which informs the treatment of blood cancer.   

  • Chronic lymphocytic leukaemia
  • Chronic myeloid leukaemia
  • Research
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Dr Piers Blombery

Genomic testing for mutations critical for CLL patients pre-treatment

Dr Piers Blombery specialises in genomic testing and heads Australia’s largest haematology laboratory. 

  • Chronic lymphocytic leukaemia
  • Research
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Review: three books on grief and loss

There are three books which Pauline Vedelago found helpful with her grief following the loss of her husband four years ago.

  • Grief and loss
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Coping with Grief landscape

Not having his dad here colours Hugh’s life: “it’s a little bit of everything”

There are times when Hugh McClure feels like screaming from the rooftop, so that everyone can know about the wonderful person that his dad was, and how much he misses him. 

  • Grief and loss
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Hugh with his dad on the Great Ocean Road in 2011

Dating after the loss of your wife, husband or partner

Leukaemia Foundation Blood Cancer Support Coordinator Shirley Cunningham shares some insight for those who are ready to start dating after loss.

  • Grief and loss
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Shirley Cunningham