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State of the Nation: Blood Cancer in Australia

We set a bold goal – to achieve Zero Lives Lost to Blood Cancer by 2035.

To demonstrate why that goal was important, we commissioned a ‘first of its kind’ analysis in 2018 to identify the challenges and opportunities that influence survival and quality of life for people with blood cancer.

In 2019 the State of the Nation: Blood Cancer in Australia (State of the Nation) report was released, the first to look at blood cancers collectively rather than as individual diseases, showing the true scale and impact of blood cancer in Australia.

The purpose of looking at blood cancers collectively was to identify, and then solve, the gaps along the care continuum affecting survival outcomes and quality of life for all people with blood cancer.

How was the State of the Nation: Blood Cancer in Australia report developed?

Independent research firm, Insight Economics produced the report in partnership with the Leukaemia Foundation. We consulted 65 leading experts from across the blood cancer ecosystem including clinicians and haematologists, research institutes, government decision-makers, blood cancer NGOs and industry.

The report draws on data from the Australian Institute of Health and Welfare (AIHW), Australian Bureau of Statistics (ABS) and state cancer registries along with survey data from more than 3200 people living with a blood cancer, providing a statistically significant snapshot of the experiences of people living with a blood cancer in Australia today.

It is comprehensive, evidence-based, patient-centred and peer-reviewed.

State of the Nation tells us that blood cancer is a major priority for the community, that impacts Australians – young and old – in every region of Australia. The personal and economic costs of not acting with urgency on blood cancer, are too great to bear.

The scale of blood cancer was alarming:

Informed by the report, we’re concentrating our time, talents and resources in three critical areas.

We want to make sure every Australian with blood cancer gets access to:

1. trusted information and education to empower informed choices

2. best-practice treatment and the latest trials, tests and diagnostic tools

3. essential supportive care to improve quality of life.

It’s what we call our Access strategy.

The report was also a driver for a key partnership with the Australian Government to establish the Blood Cancer Taskforce – a group of leading experts tasked with delivering the National Strategic Action Plan for Blood Cancer to help shape government and health system policies and practices.