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State of the Nation: Blood Cancer in Australia

Back in 2018 we first undertook the most comprehensive blood cancer survey in Australia.

The information we gathered helped the Leukaemia Foundation successfully advocate to the Federal Government to form the Blood Cancer Taskforce – a leadership voice for the blood cancer community.

With the support of the Blood Cancer Taskforce, we’re working towards a goal of zero lives lost to blood cancer by 2035. To get there, we rely on the generous sharing of time and knowledge by you and the entire blood cancer community, so in 2022 we checked in once more with a new survey.

The survey for 2022 has now closed. Thank you for sharing your experience: you’re helping to steer the National Strategic Action Plan for Blood Cancer, being a part of change for the better to help people living with a blood cancer. The survey findings will be released later this year.

 

We’ve set a bold goal – to achieve Zero Lives Lost to Blood Cancer by 2035.

To demonstrate why that goal was important, we commissioned a ‘first of its kind’ analysis in 2018 to identify the challenges and opportunities that influence survival and quality of life for people with blood cancer.

In 2019 the State of the Nation: Blood Cancer in Australia (State of the Nation) report was released, the first to look at blood cancers collectively rather than as individual diseases, showing the true scale and impact of blood cancer in Australia.

Download the 2019 State of the Nation report

The purpose of looking at blood cancers collectively was to identify, and then solve, the gaps along the care continuum affecting survival outcomes and quality of life for all people with blood cancer.

How was the 2019 State of the Nation: Blood Cancer in Australia report developed?

Independent research firm, Insight Economics produced the report in partnership with the Leukaemia Foundation. We consulted 65 leading experts from across the blood cancer ecosystem including clinicians and haematologists, research institutes, government decision-makers, blood cancer NGOs and industry.

The 2019 report draws on data from the Australian Institute of Health and Welfare (AIHW), Australian Bureau of Statistics (ABS) and state cancer registries along with survey data from more than 3200 people living with a blood cancer, providing a statistically significant snapshot of the experiences of people living with a blood cancer in Australia today.

It is comprehensive, evidence-based, patient-centred and peer-reviewed.

State of the Nation 2019 tells us that blood cancer is a major priority for the community, that impacts Australians – young and old – in every region of Australia. The personal and economic costs of not acting with urgency on blood cancer, are too great to bear.

The report was also a driver for a key partnership with the Australian Government to establish the Blood Cancer Taskforce – a group of leading experts tasked with delivering the National Strategic Action Plan for Blood Cancer to help shape government and health system policies and practices.

The scale of blood cancer was alarming:

More than 110,000 people are living with a blood cancer
$10.9 billion is the expected annual cost to the health system in 2035 to treat and care for people with blood cancer
1,375 deaths each year could be prevented through best practice treatment and care
More than 5,700 people lose their life each year, making blood cancer one of the biggest causes of cancer death