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Real stories

Stories from people living with blood cancer, their family, carers, and friends; plus research and advocacy news.

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Talking Blood Cancer: Finding Strength

Join Nerys Welch's journey through acute myeloid leukaemia (AML) / acute lymphoblastic leukaemia (ALL) loss and parenting 3 kids. Discover her solace in the Leukaemia Foundation's supportive online community.

  • Acute lymphoblastic leukaemia
  • Acute myeloid leukaemia
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Treatment and transplant news

Once a blood cancer treatment is developed, it needs to be approved for sale in Australia and subsidised, or ‘listed’, otherwise the cost for the treatment can be unaffordable for many patients. The Medical Services Advisory Committee (MSAC) or Pharmaceutical Benefits Advisory Committee (PBAC) appraises a new treatment and provides advice to the Government on whether it should be publicly funded. This includes seeking consumer comments. Here’s a summary of recent new and recommended listings for blood cancer treatments. The Leukaemia Foundation provided advice and consumer comments to PBAC/MSAC in support of these therapies being available to patients.

  • Advocacy and policy
  • Treatments and side-effects
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Blood cancer ride proves Perry’s toughest race

As Perry Judd slowly pedalled over the finishing line at the prestigious Grafton to Inverell Cycle Classic in 2013, supposedly in the form of his life but somehow lagging far behind the competition, he knew something wasn’t right. Physically exhausted, Perry feared he had glandular fever, but a blood test revealed something much more dangerous. The then 37-year-old explained: “I had a call from the GP: ‘Please come and see me, we need to talk urgently. You need to come in right away’.

  • Acute myeloid leukaemia
  • Treatments and side-effects
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Talking Blood Cancer: Mother-Daughter Cancer Warriors

Join Kate Arkadieff and Theresa Webb as they delve into non-Hodgkin's lymphoma & acute lymphoblastic leukaemia (leukemia) journeys for patients and families on the Talking Blood Cancer podcast by Leukaemia Foundation.

  • Acute lymphoblastic leukaemia
  • Non-Hodgkin lymphoma
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Physiotherapist and lymphoma survivor Julie Allen on cancer related fatigue

Discover how physiotherapist Julie Allen tackles cancer fatigue and lymphoma, enhancing the quality of life and survival for blood cancer patients.

  • Interviews with experts
  • Non-Hodgkin lymphoma
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Unlocking the Mysteries of Blood Cancer

In the ever-evolving landscape of blood cancer research, the quest to combat blood cancer continues to push boundaries. The New Directions in Leukaemia Research (NDLR) event in Adelaide last month brought together leading minds in the field to discuss breakthroughs, challenges, and the future of leukaemia treatment. From cutting-edge advancements in therapies to the promise of personalised medicine, the conference, sponsored by the Leukaemia Foundation, shed light on the latest discoveries and strategies shaping the fight against leukaemia.

  • Research
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Last updated on October 24th, 2023

Developed by the Leukaemia Foundation in consultation with people living with a blood cancer, Leukaemia Foundation support staff, haematology nursing staff and/or Australian clinical haematologists. This content is provided for information purposes only and we urge you to always seek advice from a registered health care professional for diagnosis, treatment and answers to your medical questions, including the suitability of a particular therapy, service, product or treatment in your circumstances. The Leukaemia Foundation shall not bear any liability for any person relying on the materials contained on this website.