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AL amyloidosis trials due to open this year offer “new hope”

Two clinical trials will open later this year for newly diagnosed patients with AL amyloidosis with moderate to severe cardiac disease.

  • Amyloidosis
  • Research
  • Treatments and side-effects
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Dr Simon Gibbs at an international haematology conference in Boston, in 2019

Expert Series interview with Dr Simon Gibbs on all things ‘amyloidosis’

Dr Gibbs discusses everything from the incidence, diagnosis and treatment of amyloidosis, to supportive care, quality of life, and how he came to specialise in this field.

  • Amyloidosis
  • Research
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Dr Gibbs, out and about in Nice

Diagnosed finally at 33 – Keith’s now in remission

Keith Moore was “ridiculously young” to be told he had AL amyloidosis and it took nine months before he finally got that diagnosis.

  • Amyloidosis
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Keith and Felicity Moore

A trial put Joe in remission for six years and counting

Joe participated ina trial which he says saved his life.

  • Amyloidosis
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Joe Mulaahmetovics and his family

MM13 trial results – bortezomib improves overall survival 

An amyloidosis clinical trial  described as “a staggering result, almost never seen in blood cancers”. 

  • Amyloidosis
  • Research
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Delaine Smith, CEO of the ALLG

Associate Professor Peter Mollee discusses issues around AL amyloidosis

Expert interview series: Associate Professor Peter Mollee discusses issues around AL amyloidosis  

  • Amyloidosis
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Dr Peter Mollee

Fahimeh has been in remission for seven years  

Fahimeh had an early amyloidosis diagnosis.

  • Amyloidosis
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Fahimeh and Carole

Long-term research breakthrough

Generous support helped deliver a research breakthrough that could lead to the first drug approved for patients with AL amyloidosis.  

  • Amyloidosis
  • Research
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Professor Peter Mollee

Early diagnosis made the difference for Vince

One week before his brother was diagnosed with amyloidosis, Vince discovered he carried the genes that predisposed him to the blood disorder.

  • Amyloidosis
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Vince O'Donnell with his late brother Laurie on the beach

European amyloidosis meeting highlighted the need to improve education

Vince learnt of the concerningly low rates of referral for people at risk of amyloidosis.

  • Amyloidosis
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Vince O’Donnell is a patient advocate for the Australian Amyloidosis Network.