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A trial put Joe in remission for six years and counting

Joe participated ina trial which he says saved his life.

  • Amyloidosis
  • Clinical trials
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Joe Mulaahmetovics and his family

MM13 trial results – bortezomib improves overall survival 

An amyloidosis clinical trial  described as “a staggering result, almost never seen in blood cancers”. 

  • Amyloidosis
  • Clinical trials
  • Research
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Delaine Smith, CEO of the ALLG

Expert Series: AProf. Peter Mollee discusses issues around AL amyloidosis

Expert interview series: Associate Professor Peter Mollee discusses issues around AL amyloidosis  

  • Amyloidosis
  • Interviews with experts
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Dr Peter Mollee

Fahimeh has been in remission for seven years  

Fahimeh had an early amyloidosis diagnosis.

  • Amyloidosis
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Fahimeh and Carole

Long-term research breakthrough

Generous support helped deliver a research breakthrough that could lead to the first drug approved for patients with AL amyloidosis.  

  • Amyloidosis
  • Research
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Professor Peter Mollee

Early diagnosis made the difference for Vince

One week before his brother was diagnosed with amyloidosis, Vince discovered he carried the genes that predisposed him to the blood disorder.

  • Amyloidosis
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Vince O'Donnell

European amyloidosis meeting highlighted the need to improve education

Vince learnt of the concerningly low rates of referral for people at risk of amyloidosis.

  • Amyloidosis
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Vince O'Donnell

New amyloidosis drugs and clinical trials update

A new class of drug may soon be available to Australian patients with significant cardiac AL amyloidosis

  • Amyloidosis
  • Clinical trials
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Dr Hasib Sidiqi, right, with one of his “Mayo mentors” and amyloidosis specialist, Dr Morie Gertz, at the American Society of Hematology 2018 annual meeting.

“It’s an ongoing journey you’ve got to manage”

Cath felt “absolute relief” to be diagnosed with amyloidosis because she finally knew what she was dealing with.

  • Amyloidosis
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Cath Armstrong, right, and her eldest daughter, Rebecca.

In remission after seeking second opinion

Carole initially had minor symptoms before being diagnosed with amyloidosis.

  • Amyloidosis
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Carole Bartlett at work in a lab