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Stories

From real patient stories to tips on living well, hear firsthand from people who have faced blood cancer.

We’ve also got the latest research and advocacy news, as well as stories from our wonderful fundraisers and donors. You can subscribe to our e-newsletters and event news here.

Same cancer, same drug but our access to treatment was anything but consistent

They’re three women all battling an incurable type of blood cancer, but Neda, Nikki and Shirley have felt hardship in very different ways.

  • Myeloma
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Neda Masters

Daratumumab – first new myeloma agent PBAC-recommended in years

The drug has received a positive recommendation for PBS listing.

  • Myeloma
  • Treatments and side-effects
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Darzalex

Shirley’s “so well” on her latest treatment – daratumumab

Shirley Irwin has had radiotherapy and two transplants, had surgery, five different lines of treatment, and relapsed twice.

  • Myeloma
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Bruce and Shirley Irwin on the beach

Research aims to improve QOL by decreasing treatment toxicity

Kate Vandyke is leading exciting research examining whether a new inhibitor can be used to prepare myeloma patients for therapies and increase their efficacy.

  • Myeloma
  • Research
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Kate van Dyke

One in 110,000: Neda’s Story

Neda has experienced first-hand the benefit of Leukaemia Foundation support services - all thanks to the generosity of Australians.

  • Myeloma
Read more
Woman in a headscarf smiling at the camera

Davina’s selfless generosity could spark research breakthrough

Through a Gift in her Will, Davina's been able to fund strategic research projects to help people with blood cancer.

  • Myeloma
  • Our supporters
  • Research
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Davina Sickerdick standing outside Buckingham Palace in London

Jeanette takes nothing for granted

  • Myeloma
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Jeanette Kingston and family on the beach

First ‘next generation’ genetic test available in six months

Australian patient outcomes in the rapidly changing fields of genetic testing and precision medicine has been accelerated by Leukaemia Foundation funding. 

  • Myeloma
  • Research
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Anna Brown in the lab

The tale of ‘the terrible twosome’ #kickingmyelomasbutt

Kellie and Rita have walked the same path since their diagnoses, but they've had very different experiences.

  • Myeloma
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Kellie and Rita

Friendship an “absolute blessing” after bereavement

Not only do Lynette (Lyn) Healy and Lynnette (Lynnie) Coupar share the same name, but also the tragedy of losing a partner to blood cancer. 

  • Grief and loss
  • Myeloma
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Lyn Healy and her late husband Don, standing outside

Addressing knowledge gaps in immunoglobulin therapy

Dr Khai Li Chai is working to improve the prevention and treatment of infection in blood cancer patients with antibody replacement therapy.

  • Chronic lymphocytic leukaemia
  • Myeloma
  • Non-Hodgkin lymphoma
  • Research
  • Treatments and side-effects
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Khai Li Chai

Blood cancer doesn’t stop: Paul’s story

Super survivor Paul is thought to be one of the first Australians with myeloma to conquer COVID-19.

  • Myeloma
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Paul Cronin on holiday, with large mountains in the background

Leukaemia Foundation invests $2.6m+ in innovative myeloma research

Better understanding and treating myeloma is the focus of eight research projects that are part of the Leukaemia Foundation’s National Research Program.

  • Acute lymphoblastic leukaemia
  • Acute myeloid leukaemia
  • Myeloma
  • Research
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Illustration of a microscope, test tubes, and clipboard

PBAC reconsidered plitidepsin for myeloma 

The Pharmaceutical Benefits Advisory Committee (PBAC) considered four blood cancer treatments at its March 2020 meeting including a drug for myeloma – plitidepsin (Aplidin®).

  • Advocacy and policy
  • Myeloma
  • Treatments and side-effects
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Illustration of various treatments, pills, medicines

Cherryl meditates to reduce stress and for her healing

Meditation has improved Cherryl's quality of life.

  • Myeloma
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Cherryl and her dog, Marley

Make Blood Cancer Visible

Download this beautiful collection of stories shared by Australians who have faced blood cancer.

  • Acute lymphoblastic leukaemia
  • Acute myeloid leukaemia
  • Chronic lymphocytic leukaemia
  • Chronic myeloid leukaemia
  • Hodgkin lymphoma
  • Myeloma
  • Non-Hodgkin lymphoma
  • Other blood cancers
Read more
Illustration of various cells - neutrophils, lymphocytes, basophil, Eosinophil and red blood cells