Stories - Leukaemia Foundation

Feeling tired all the time because of cancer

Discover how cancer fatigue impacts daily life and learn ways to manage feeling tired all the time due to cancer. Explore Neda's inspiring story.

chemotherapy
Myeloma
Treatments and side-effects

From kidney stones to chemo

Wayne Douglas spent more than half a lifetime working with heavy rock and concrete in the civil construction industry. In 2018, Wayne joined the roughly 2,600 people diagnosed with myeloma in Australia each year.

accommodation
bone lesion
chemotherapy
exercise
fatigue
male
Myeloma
Peter MacCallum Cancer Centre
regional
rural
Victoria

Access to best practice needed to reduce blood cancer mortality

Patients understand that clinical best practice care begins with an accurate and timely diagnosis.

Advocacy and policy
AML
Myeloma
Treatments and side-effects

Access to best practice needed to reduce blood cancer mortality

Jennifer was diagnosed with myeloma at 27 years old

Jennifer Marx shares insight into being diagnosed with myeloma at almost 27 years old - a condition far more prevalent in older people. Jennifer shares how she navigated the healthcare system, managed treatment and relationships, and her experience having two autologous transplants.

Myeloma

PBAC considering selinexor for a third time

For the third time, selinexor (Xpovio®) will be considered by the Pharmaceutical Benefits Advisory Committee (PBAC) at its November 2022 meeting for the treatment of relapsed/refractory (R/R) myeloma.

Myeloma
Treatments and side-effects

Martin’s setting new records for remission and enjoying life while living with myeloma

During the 22 years Martin Boling has had myeloma, blood cancer of various types has affected four other members of his family too, not just him.

Myeloma

Targeting DCAF as a novel treatment strategy for therapy-resistant myeloma 

Meet the research team developing a myeloma treatment with maximum efficacy and minimal side effects

Myeloma

From dialysis to blood cancer: Robert’s story

Northern Territory local Robert Smith had been living on dialysis for 12 years when he was diagnosed with myeloma. Robert discusses the importance that the support of his wife, Jo was in his journey. He takes us through his story — from diagnosis, to what it was like to travel to Adelaide for life-saving treatment and his recovery.

Myeloma

First CAR T-cell trial for myeloma a success for Andrew

Andrew was the first person in Western Australia to have the life-changing therapy.

Clinical trials
Myeloma
Treatments and side-effects

Ann’s finally in a happy place after 22 years living with myeloma

Ann Bruce shares the story of her diagnosis, in her own words.

Myeloma

MSAC advising on cilta-cel CAR T-cell therapy for myeloma

Ciltacabtagene autoleucel (cilta-cel), is being appraised by the Medical Services Advisory Committee (MSAC) for listing on the Medicare Benefits Schedule.