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Ten months after his diagnosis and having failed standard treatment, George Yiannakis is the first of potentially 12 Australians to go on the international MM24 clinical trial for AL amyloidosis.
We spoke to Dr Sidiqi about his specialising field of amyloidosis.
Daratumumab (Darzalex®) could be the first ever therapy to be approved in Australia for AL amyloidosis.
Noemi Horvath is a highly reputed consultant haematologist at Royal Adelaide Hospital who has dedicated most of her life to her work and her special interest has long been amyloidosis.
When Sue was diagnosed with a blood cancer, she found herself living through experiences she had discussed in one of her talks, This is Not the Life I Ordered.
David’s AL amyloidosis is in remission following compassionate access to daratumumab.
In a first-ever Australian-French collaboration, an exciting new clinical trial, due to open before Christmas, will give Australians with relapsed or refractory AL amyloidosis access to a new drug combination.
Two clinical trials will open later this year for newly diagnosed patients with AL amyloidosis with moderate to severe cardiac disease.
Dr Gibbs discusses everything from the incidence, diagnosis and treatment of amyloidosis, to supportive care, quality of life, and how he came to specialise in this field.
Keith Moore was “ridiculously young” to be told he had AL amyloidosis and it took nine months before he finally got that diagnosis.
Joe participated ina trial which he says saved his life.
An amyloidosis clinical trial described as “a staggering result, almost never seen in blood cancers”.
Expert interview series: Associate Professor Peter Mollee discusses issues around AL amyloidosis
Fahimeh had an early amyloidosis diagnosis.
Generous support helped deliver a research breakthrough that could lead to the first drug approved for patients with AL amyloidosis.
One week before his brother was diagnosed with amyloidosis, Vince discovered he carried the genes that predisposed him to the blood disorder.
Vince learnt of the concerningly low rates of referral for people at risk of amyloidosis.
A new class of drug may soon be available to Australian patients with significant cardiac AL amyloidosis
Cath felt “absolute relief” to be diagnosed with amyloidosis because she finally knew what she was dealing with.
Carole initially had minor symptoms before being diagnosed with amyloidosis.
