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Month: October 2019

Information, insights, even exercise covered at the CLL patient forum

The Leukaemia Foundation hosted a special CLL patient forum in May 2019.

  • Chronic lymphocytic leukaemia
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Forum participants during the exercise session.

Going through treatment has taken the worry out of watch and wait for Patricia

Two weeks after retiring, it came as “a great shock” for Patricia to find out she had CLL.  

  • Chronic lymphocytic leukaemia
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Patricia Stevenson and Pete’s granddaughter, Sophie Meyer.

Chemo-free drug – Venetoclax – now listed on the PBS for CLL

Venetoclax (Venclexta®), is now available through the PBS to treat CLL. 

  • Chronic lymphocytic leukaemia
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Cancer Concierge Pilot: Assessing CLL needs and providing targeted interventions

More than 80 people with CLL signed up for the Leukaemia Foundation’s Cancer Concierge pilot program that ran for six months, is now closed, and is being evaluated.

  • Chronic lymphocytic leukaemia
  • Support services
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Kim Pendelton, a participant in the Cancer Concierge pilot program, with Cancer Concierge Coordinator, Katherine Treble.

Matt travels to the other side of the world for his ‘miracle drug’

Matt travels to the U.S. every 12 weeks for his hairy cell leukaemia treatment.

  • Other blood cancers
  • Treatments and side-effects
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Matt-Hairy-Cell-Leukaemia-variant

Australians unite for Light the NIght

  • Media releases
  • Our supporters
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Illustration of a mobile phone flashing 'News' on the screen

WhiMSICAL study – on the way to 1000 participants and ‘big data’

The diagnosis, treatment, symptom and side-effect details of more than 400 people with WM recorded on the first global registry.

  • Other blood cancers
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Bronwyn advocated for when and where she was treated

By the time Bronwyn Bisley was finally given a diagnosis she already knew.

  • Hodgkin lymphoma
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Bronwyn and her brother Cameron

Australians raise the bar for the Leukaemia Foundation’s U.G.L.Y Bartender of the Year

  • Media releases
  • Our supporters
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Illustration of a mobile phone flashing 'News' on the screen

Quest to better understand MDS and find out more effective therapies

When someone with MDS is treated with azacitidine (Vidaza®), it takes six months to find out if they are responding to the drug. Dr Unnikrishnan is working to change that.

  • Myelodysplastic syndromes
  • Research
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Dr Ashwin Unnikrishnan