While a shock blood cancer diagnosis put 34-year-old Josh Gourlay’s life temporarily on hold, it also presented him with a new mindset, and new opportunities.
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My name is Kish, I’m a 35-year-old who was diagnosed with acute myeloid leukaemia (AML) in October last year. There were no warning signs – things just hit, very suddenly.
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After numerous setbacks, Christie had to slowly transition back to her studies not once but twice. This forced her to make a tough decision that would shape the rest of her career.
Once a blood cancer treatment is developed, it needs to be approved for sale in Australia and subsidised, or ‘listed’, otherwise the cost for the treatment can be unaffordable for many patients. The Medical Services Advisory Committee (MSAC) or Pharmaceutical Benefits Advisory Committee (PBAC) appraises a new treatment and provides advice to the Government on whether it should be publicly funded. This includes seeking consumer comments. Here’s a summary of recent new and recommended listings for blood cancer treatments. The Leukaemia Foundation provided advice and consumer comments to PBAC/MSAC in support of these therapies being available to patients.
As Perry Judd slowly pedalled over the finishing line at the prestigious Grafton to Inverell Cycle Classic in 2013, supposedly in the form of his life but somehow lagging far behind the competition, he knew something wasn’t right. Physically exhausted, Perry feared he had glandular fever, but a blood test revealed something much more dangerous. The then 37-year-old explained: “I had a call from the GP: ‘Please come and see me, we need to talk urgently. You need to come in right away’.
This issue of preventable deaths is now being addressed along with other priority actions around national standards of care and consistent access to clinical best practice.
A timely and accurate blood cancer diagnosis is critical to clinical best practice.
Patients understand that clinical best practice care begins with an accurate and timely diagnosis.
