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What drove Nathalie Cook to help list Pegasys on the PBS

Nathalie Cook OAM, who was diagnosed with MPN in 2008, tells the story of the delay in her diagnosis and how after attending a conference in the USA, on the flight home, she made the decision to try to get Pegasys on the Pharmaceutical Benefits Scheme for people with MPN in Australia. It took 7 years to achieve this goal and the hearing her share the story of how she made it happen is truly astounding.

  • Leukaemia
  • Myeloproliferative neoplasms
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Talking Blood Cancer Nathalie Cook

‘Family is the best investment’: Jo’s role as a carer

In our first episode of Season Two, we spoke to Tim Keen who was diagnosed with acute promyelocytic leukaemia (a rare subtype of acute myeloid leukaemia) in 1999. In this episode we speak with Tim's wife and carer, Jo Keen. Jo shares her insights about her role as a carer. She talks about how her relationship with Tim strengthened throughout this tough journey and ways that they remained positive together. She discusses how making time for your family is the best investment you can make for own happiness.

  • Leukaemia
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Talking Blood Cancer Jo Keen