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Wayne’s story: living well with chronic lymphocytic leukaemia

In May 2007, Wayne was diagnosed with chronic lymphocytic leukaemia CLL at the age of 55. It was a shock, but for him life carried on more or less as normal as his haematologist put him on ‘watch and wait’.

It wasn’t until three years later that he was told he would need to undergo his first chemo treatment which successfully kept him in remission until mid-2016 when he was given a choice. He could go through chemo again or try a new oral therapy – Wayne chose the oral therapy method and has been able to get on with life and feels like he did 20 years ago.

His advice for someone in relapse with CLL is check with their treating specialist and ask for options.

The Leukaemia Foundation is there to support people, like Wayne, with blood cancer and help them navigate that journey.

Remember, discussing treatment options for CLL with your haematologist is important to ensure you are on a treatment plan that works best for you. If you’re starting a new treatment plan it’s important to find a way that works for you to build a habit and stay compliant with treatment protocols – a diary, checklist, time of day – all help to keep you on track.

Connect with our support team

Fill in your details below and one of our Blood Cancer Support Coordinators will contact you within the next five (5) business days to discuss the services and support available to you. If you have an urgent request, please contact us on 1800 620 420 or submit a referral form here.

Last updated on January 25th, 2023

Developed by the Leukaemia Foundation in consultation with people living with a blood cancer, Leukaemia Foundation support staff, haematology nursing staff and/or Australian clinical haematologists. This content is provided for information purposes only and we urge you to always seek advice from a registered health care professional for diagnosis, treatment and answers to your medical questions, including the suitability of a particular therapy, service, product or treatment in your circumstances. The Leukaemia Foundation shall not bear any liability for any person relying on the materials contained on this website.