From real patient stories to tips on living well, hear firsthand from people who have faced blood cancer.
We’ve also got the latest research and advocacy news, as well as stories from our wonderful fundraisers and donors. You can subscribe to our e-newsletters and event news here.
Nathalie Cook OAM, who was diagnosed with MPN in 2008, tells the story of the delay in her diagnosis and how after attending a conference in the USA, on the flight home, she made the decision to try to get Pegasys on the Pharmaceutical Benefits Scheme for people with MPN in Australia. It took 7 years to achieve this goal and the hearing her share the story of how she made it happen is truly astounding.
When Debbie McFarlane was diagnosed with the myeloproliferative neoplasm (MPN), polycythaemia vera (PV) in 2013, she didn’t realise it was a form of blood cancer.
A new monoclonal antibody, discovered by accident by Adelaide researchers, could become the world’s first effective treatment for primary myelofibrosis (MF).
Professor Wendy Erber and her research team in Western Australia are developing a monitoring tool they hope will identify MPN patients who will go on to develop leukaemia.
It’s emerging in all cancers, but particularly in the MPNs, that “genomics is everything” according to Professor Andrew Perkins, an expert in myeloproliferative neoplasms (MPN).
Diagnosed with PV and ET at the age of 18, Sharon was having treatment when she fell pregnant with the first of her three healthy children in 2000.
A lot of ‘world firsts’ are involved in an Australian clinical trial that is taking a precision medicine approach to treating CMML, a neglected and serious rare blood cancer that is poorly understood.
Dr Forsyth is passionate about what MPN patients can do to improve their health.
Sue Taylor has been curious about whether she may in fact have a different type of MPN to her diagnosis.
After losing her dad to MDS, and her brother’s diagnosis just a month before hers, Christine Heath’s family underwent genomic testing to understand whether their MDS could be hereditary.
Basit Salik, Dr Jamie Kuzich and Dr Julian Grabek are the successful recipients of the 2021 PhD Scholarships.
Jennie and Russell Wigginton were planning for baby number two, when Jennie was diagnosed "out of the blue".
Professor David Ross discusses the "massive explosion" of recent clinical trial activity in MPN.
Dr Liesl Butler is investigating the gene mutations and biological pathways that lead to the development of MPN.
Meet Tereena Cocks, who has practised meditation and visualisation almost as long as she’s been living with blood cancer – nearly half her life.
Veteran traveller Bryan Mitchell, get treatment for his MDS as he journeys from country to country… until COVID-19 put a stop to his travels.
Seven years after being diagnosed with PV, Ken’s spleen suddenly ruptured.
How the MPNs are classified is set to change with eight new classifications based on the underlying mechanisms that drive the mutations.
Professor Ricky Johnstone hopes to find new research treatments for B-cell lymphomas.
