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Stories

From real patient stories to tips on living well, hear firsthand from people who have faced blood cancer.

We’ve also got the latest research and advocacy news, as well as stories from our wonderful fundraisers and donors. You can subscribe to our e-newsletters and event news here.

Jennie’s had baby George since her MPN diagnosis

Jennie and Russell Wigginton were planning for baby number two, when Jennie was diagnosed "out of the blue".

  • Myeloproliferative neoplasms
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Jennie Wigginton and her family on holiday at Wilson’s Promontory in September 2017

Clinical trials critical to finding curative therapies for MPN

Professor David Ross discusses the "massive explosion" of recent clinical trial activity in MPN.

  • Myeloproliferative neoplasms
  • Research
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Dr David Ross and others in Tokyo

Improving outcomes for Australians with an MPN 

Dr Liesl Butler is investigating the gene mutations and biological pathways that lead to the development of MPN.

  • Myeloproliferative neoplasms
  • Research
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Gene

Tereena goes to her “happy place” when she’s in pain or discomfort

Meet Tereena Cocks, who has practised meditation and visualisation almost as long as she’s been living with blood cancer – nearly half her life.

  • Lifestyle and living well
  • Myeloproliferative neoplasms
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Tereena with alpacas

Haemo-globetrotter Bryan has blood tranfusions on his travels

Veteran traveller Bryan Mitchell, get treatment for his MDS as he journeys from country to country… until COVID-19 put a stop to his travels.  

  • Myelodysplastic syndromes
  • Myeloproliferative neoplasms
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Bryan sitting in a boat, with the Murray cod caught on a fishing trip at Lake Mulwala

Ken isn’t ruled by his MPN and is optimistic about his future

Seven years after being diagnosed with PV, Ken’s spleen suddenly ruptured.

  • Myeloproliferative neoplasms
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Ken at a Fluro Friday mental health promotion at Phillip Island in 2016 at which he was a speaker.

New classifications of MPN mean better diagnostics and more definitive prognoses

How the MPNs are classified is set to change with eight new classifications based on the underlying mechanisms that drive the mutations.

  • Myeloproliferative neoplasms
  • Research
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Professor Tony Green

Searching for biomarkers and better treatments for B-cell lymphomas

Professor Ricky Johnstone hopes to find new research treatments for B-cell lymphomas.

  • Acute myeloid leukaemia
  • Myelodysplastic syndromes
  • Myeloproliferative neoplasms
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Dr Pilar Dominguez with Professor Ricky Johnstone

I’m going to live life to the fullest!

"We should try and live life to the fullest and get out and explore the world while I’m still well.”

  • Myeloproliferative neoplasms
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Caeleigh Hancock and husband Ian hiking near some waterfalls