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In May 2020, Fiona was diagnosed with Myelodysplastic Syndrome. Also known as MDS, it is a type of blood cancer that affects the production of normal blood cells in the bone marrow. Fiona shares what it was like to be diagnosed with a rare blood disease as a mother of five, wife and nurse, in the midst of the COVID-19 pandemic.
A Phase I investigator-driven clinical trial, which is ready to recruit its first participant, gives Australian patients with high-risk MDS access to two new oral drugs.
Don Hayes had an allogeneic stem cell transplant days before his 71st birthday.
Tony Wakely’s diagnosis with MDS quickly transformed to AML, which he beat with a transplant. But a year later, he was shocked to find out his MDS had come back.
Two new international clinical trials are expected to improve access to new therapies for Australians with MDS as part of the Leukaemia Foundation’s Trials Enabling Program (TEP).
The Leukaemia Foundation provided consumer comments to the Pharmaceutical Benefits Advisory Committee (PBAC) in relation to Otsuka Australia Pharmaceutical’s resubmission for decitabine and cedazuridine (Inqovi®) for high-risk MDS and CMML.
A lot of ‘world firsts’ are involved in an Australian clinical trial that is taking a precision medicine approach to treating CMML, a neglected and serious rare blood cancer that is poorly understood.
Dr Devendra Hiwase thinks every patient with this rare form of blood cancer should have molecular profiling.
Tony Wakely shares his personal journal, where he documents his experiences with MDS and AML.
The treatment for newly diagnosed MDS will be available “very soon” to Australians in a clinical trial.
The Australian Familial Haematological Cancer Study (AFHCS) leads the world in the field and has a research cohort of more than 200 families with a history of blood cancer.
After losing her dad to MDS, and her brother’s diagnosis just a month before hers, Christine Heath’s family underwent genomic testing to understand whether their MDS could be hereditary.
This MDS World Awareness Day, Danny Palmer will celebrate achieving remission after undergoing a life-saving transplant earlier this year. He’s now committed to raising awareness of the many different blood cancers, encouraging others to donate blood and plasma, as well as fundraise in support of the community.
Dr Steven Lane hopes to understand how myelodysplasia (MDS) forms from normal cells.
Amber Walker has relied on fortnightly blood transfusions since being told she had blood cancer for the second time.
Better understanding and treating MDS is the focus of five new research projects that are part of the Leukaemia Foundation’s National Research Program.
Ulrich Steidl discusses his work as an experimental haematologist in MDS and AML.
Veteran traveller Bryan Mitchell, get treatment for his MDS as he journeys from country to country… until COVID-19 put a stop to his travels.
