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Stories

From real patient stories to tips on living well, hear firsthand from people who have faced blood cancer.

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Understanding MDS and the biological processes driving treatment response

Dr Steven Lane hopes to understand how myelodysplasia (MDS) forms from normal cells.

  • Myelodysplastic syndromes
  • Research
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Steven Lane in the lab

“Every two weeks I need two bags of blood”

Amber Walker has relied on fortnightly blood transfusions since being told she had blood cancer for the second time.

  • Myelodysplastic syndromes
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Amber Walker in hospital

Leukaemia Foundation invests in innovative MDS research 

Better understanding and treating MDS is the focus of five new research projects that are part of the Leukaemia Foundation’s National Research Program.

  • Myelodysplastic syndromes
  • Research
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Illustration of a microscope, test tubes, and clipboard

Professor Ulrich Steidl describes research as “a team sport”

Ulrich Steidl discusses his work as an experimental haematologist in MDS and AML.

  • Acute myeloid leukaemia
  • Myelodysplastic syndromes
  • Research
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Dr Ulrich Steidl

Haemo-globetrotter Bryan has blood tranfusions on his travels

Veteran traveller Bryan Mitchell, get treatment for his MDS as he journeys from country to country… until COVID-19 put a stop to his travels.  

  • Myelodysplastic syndromes
  • Myeloproliferative neoplasms
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Bryan sitting in a boat, with the Murray cod caught on a fishing trip at Lake Mulwala

Quest to better understand MDS and find out more effective therapies

When someone with MDS is treated with azacitidine (Vidaza®), it takes six months to find out if they are responding to the drug. Dr Unnikrishnan is working to change that.

  • Myelodysplastic syndromes
  • Research
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Dr Ashwin Unnikrishnan

Merrick from Berwick has “reported for duty” since 2012

For almost eight years, this has been Brian Merrick’s greeting when entering the treatment room in Melbourne for his monthly round of azacitidine (Vidaza®) injections on a clinical trial.

  • Myelodysplastic syndromes
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Brian Merrick

Stepping up to the challenge of curing MDS

Louise thought it was her busy job that was making her tired, when she received a shock MDS diagnosis.

  • Myelodysplastic syndromes
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Brett and Louise in Dubrovnik

Searching for biomarkers and better treatments for B-cell lymphomas

Professor Ricky Johnstone hopes to find new research treatments for B-cell lymphomas.

  • Acute myeloid leukaemia
  • Myelodysplastic syndromes
  • Myeloproliferative neoplasms
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Dr Pilar Dominguez with Professor Ricky Johnstone

Talking myelodysplastic syndrome with Dr Melita Kenealy

From current treatments to living with the disease, Dr Melita Kenealy covers the basics of MDS.

  • Myelodysplastic syndromes
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Melita Kenealy

Improving the “wait and see” approach to treatment for high-risk blood cancer

Researchers have discovered why half of patients with a type of high-risk blood cancer will not respond to a common treatment.

  • Myelodysplastic syndromes
  • Research
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Dr Ashwin Unnikrishnan