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Stories

From real patient stories to tips on living well, hear firsthand from people who have faced blood cancer.

We’ve also got the latest research and advocacy news, as well as stories from our wonderful fundraisers and donors. You can subscribe to our e-newsletters and event news here.

Self-care and honesty vital for dads living with blood cancer

This Father’s Day, and every day, we’re celebrating brave Aussie dads like Bill Kuluris, who are living with a blood cancer.

  • Chronic lymphocytic leukaemia
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Bill Kuluris with family

“Trev is still looking after me” says Pauline

Pauline Vedelago tells the story of her husband of 31 years, Trevor.

  • Chronic lymphocytic leukaemia
  • Grief and loss
  • Non-Hodgkin lymphoma
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Trevor and Pauline with their dog

Breaking barriers: At the table with best and brightest

Deb Sims shares her story to help us mark Blood Cancer Awareness Month. Deb has blood cancer and is also a member of the Blood Cancer Taskforce.

  • Advocacy and policy
  • Chronic lymphocytic leukaemia
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Deb Sims with her family

Leigh’s story: living well with chronic lymphocytic leukaemia

Leigh was diagnosed with CLL at 25 years old.

  • Chronic lymphocytic leukaemia
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Leigh with CLL

Julie’s story: living well with chronic lymphocytic leukaemia

For Julie it's all about family and friends and staying positive. Stay positive, life is too precious.

  • Chronic lymphocytic leukaemia
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Julie with CLL

Jackie’s story: living well with chronic lymphocytic leukaemia

Jackie is staying fit and living her normal life the way she planned before she was diagnosed.

  • Chronic lymphocytic leukaemia
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Jackie with CLL

Addressing knowledge gaps in immunoglobulin therapy

Dr Khai Li Chai is working to improve the prevention and treatment of infection in blood cancer patients with antibody replacement therapy.

  • Chronic lymphocytic leukaemia
  • Myeloma
  • Non-Hodgkin lymphoma
  • Research
  • Treatments and side-effects
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Khai Li Chai

Bruce has found his pot of gold – acalabrutinib

Bruce was the first patient in Adelaide to join an international CLL trial.

  • Chronic lymphocytic leukaemia
  • Treatments and side-effects
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Bruce Wood and his wife, Belinda Wood

Decisions from the March PBAC meeting for CLL/SLL

Acalabrutinib (Calquence®) will be added to the therapy arsenal for CLL and SLL.

  • Advocacy and policy
  • Chronic lymphocytic leukaemia
  • Other blood cancers
  • Treatments and side-effects
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Illustration of a hand holding a megaphone

Making personalised care possible

We've launched a new project to understand what people with CLL go through.

  • Chronic lymphocytic leukaemia
  • Support services
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Wayne Clark

Information, insights, even exercise covered at the CLL patient forum

The Leukaemia Foundation hosted a special CLL patient forum in May 2019.

  • Chronic lymphocytic leukaemia
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Forum participants during the exercise session.

Going through treatment has taken the worry out of watch and wait for Patricia

Two weeks after retiring, it came as “a great shock” for Patricia to find out she had CLL.  

  • Chronic lymphocytic leukaemia
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Patricia Stevenson and Pete’s granddaughter, Sophie Meyer.

Chemo-free drug – Venetoclax – now listed on the PBS for CLL

Venetoclax (Venclexta®), is now available through the PBS to treat CLL. 

  • Chronic lymphocytic leukaemia
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Leukaemia Foundation CEO, Bill Petch with Health Minister, Greg Hunt at the PBS announcement in February 2019.

Cancer Concierge Pilot: Assessing CLL needs and providing targeted interventions

More than 80 people with CLL signed up for the Leukaemia Foundation’s Cancer Concierge pilot program that ran for six months, is now closed, and is being evaluated.

  • Chronic lymphocytic leukaemia
  • Support services
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Kim Pendelton, a participant in the Cancer Concierge pilot program, with Cancer Concierge Coordinator, Katherine Treble.

Make Blood Cancer Visible

Download this beautiful collection of stories shared by Australians who have faced blood cancer.

  • Acute lymphoblastic leukaemia
  • Acute myeloid leukaemia
  • Chronic lymphocytic leukaemia
  • Chronic myeloid leukaemia
  • Hodgkin lymphoma
  • Myeloma
  • Non-Hodgkin lymphoma
  • Other blood cancers
Read more
Illustration of various cells - neutrophils, lymphocytes, basophil, Eosinophil and red blood cells

Larissa’s story: living well with chronic lymphocytic leukaemia

Larissa is grateful for each sunrise and getting to watch her grandchildren grow.

  • Chronic lymphocytic leukaemia
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Larissa with CLL

Wayne’s story: living well with chronic lymphocytic leukaemia

Wayne is getting on with life and feels like he did 20 years ago.

  • Chronic lymphocytic leukaemia
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Wayne Clark

From clinical trial to remission

Dr John Rogers is one of the first Australians with chronic lymphocytic leukaemia (CLL) to successfully stop treatment on a venetoclax clinical trial.

  • Chronic lymphocytic leukaemia
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John Rogers and his wife, Margot

“I needed two transfusions to make my daughter’s wedding”

Des says he owes his life to a clinical trial for the drug venetoclax.

  • Chronic lymphocytic leukaemia
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Des and daughter Jessica

Breakthrough therapy gives hope for new leukaemia treatment

  • Chronic lymphocytic leukaemia
  • Research
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Illustration of various treatments, pills, medicines