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Real stories

Stories from people living with blood cancer, their family, carers, and friends; plus research and advocacy news.

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Addressing blood cancer challenges and improving patient outcomes

This issue of preventable deaths is now being addressed along with other priority actions around national standards of care and consistent access to clinical best practice.

  • Advocacy and policy
  • Research
  • Treatments and side-effects
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Article #3 Tile

Justine Brennan on Blood Cancer Support Coordinators’ return to hospitals

When a patient is diagnosed with blood cancer, both the initial diagnosis and the resulting treatment and changes to daily life can feel overwhelming.

  • Support services
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Navigating a rare blood disease as a mother of five: Fiona’s story

In May 2020, Fiona was diagnosed with Myelodysplastic Syndrome. Also known as MDS, it is a type of blood cancer that affects the production of normal blood cells in the bone marrow. Fiona shares what it was like to be diagnosed with a rare blood disease as a mother of five, wife and nurse, in the midst of the COVID-19 pandemic.

  • Myelodysplastic syndromes
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Fiona McWhirter

In My Own Words: Patrick Griffin was told he had months to live after a third cancer diagnosis

Patrick Griffin's overcame prostate cancer, then lymphoma, before being diagnosed with CLL.

  • Chronic lymphocytic leukaemia
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Patrick Griffin and his CLL medication

Being immunocompromised makes CLL patients one of the most vulnerable patient groups

Clinical haematologist and researcher, Associate Professor Nada Hamad discusses the latest on CLL.

  • Chronic lymphocytic leukaemia
  • Treatments and side-effects
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Diana Brown

Don had a stem cell transplant at 70 and says “exercise helped”

Don Hayes had an allogeneic stem cell transplant days before his 71st birthday.

  • Myelodysplastic syndromes
  • Research
  • Treatments and side-effects
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