Frequently Asked Questions
How can I access the service?
You can access the service directly via support.leukaemia.org.au or find links to the service on the Leukaemia Foundation home page and throughout the Leukaemia Foundation website.
What are the six learning modules?
- Return to work (Learn how and what help is available to return to work after blood cancer)
- Cancer related fatigue (Learn what cancer related fatigue is and how you can manage it)
- Emotional resilience (Blood cancer is a major stress that turns your life upside down. Learn how you can manage your emotions and maintain your wellbeing)
- Financial and legal matters (Learn about how to best manage your money and help with legal matters)
- Long term side-effects (Learn about and understand why you have these side effects and tips to manage them)
- Transition to a new normal (Learn to adjust to living with blood cancer)
Will the Leukaemia Foundation be adding more information to the service in the future?
Yes! We’ll work with users of the service, listen to feedback and examine usage data to determine how best to prioritise development of new learning modules. Our aim is to design a service that continues to adapt and meet the growing needs of users.
Who do we expect to use this service?
Whilst the service will be useful for almost anyone with a blood cancer or their support network, we expect consumers with lower complexity of needs to benefit the most.
Will existing Leukaemia Foundation patients be expected to use the service?
No. Patients can continue to interact and access Leukaemia Foundation services as they always have. This is an additional offering that gives existing and new patients the opportunity to access us via a digital service if they choose.
Does it mean Blood Cancer Support Coordinators (BCSCs) will no longer be available to talk to patients?
The goal is to digitise the knowledge and expertise of the BCSCs and make it available to a broader audience. We expect this will free up time for the BCSCs to support more complex or personal conversations. They will also be available to chat directly to users of the online service via the ‘Connect’ function, providing real-time web chat.
Is it an app that needs to be downloaded?
No, it will be accessible just like any other website and will be available to use on any device with an internet connection and browser. In the future we may look to introduce an app-based option, but this will depend on feedback from our users and understanding how it might improve their experience.
What can I do on the Online Blood Cancer Support Service?
As a guest you can browse through the blood cancer learning modules anonymously and access a wealth of curated information including:
- learning modules that utilise multimedia, focusing on peer-to-peer learning
- a service directory providing a list of health professional service providers across the country who know about blood cancer. It covers regional and metro areas and is easily searched by postcode.
Once you personalise your experience by completing a self-assessment registration, you’ll have access to a members dashboard. It provides a personalised snapshot of current and upcoming activities and actions, including:
- progress of learn modules
- tips
- notifications
- bookmarking content of interest
- recommended content and services
- goal setting
- energy coach progress
- chat
- upcoming events
- personal information
You will also have access to additional services such as:
- a digital energy coach to analyse reported energy levels and provide evidence-based strategies and next steps for cancer-related fatigue
- a digital chat service that connects you to Leukaemia Foundation Blood Cancer Support Coordinators.
Do I need to sign up to make use of it?
Users will be able to browse the digital service much like a website with a traditional navigation structure. All topics of content and the specialised services directory will be available to all users, whether they are anonymous guests or members.
However, some ‘next steps’ recommendations are only available to members, such as the energy coach, goal setting and connecting to Blood Cancer Support Coordinators via web chat.
Anonymous users will be encouraged to complete a self-assessment, in order to access more of the service.
What information do I need to share when setting up my profile?
We’re keeping it simple. To start with we just need your name and best contact method – email or mobile. You can then complete additional goals and profile information as you make use of the service, at your own pace.
Are my personal details safe?
To ensure the safety of your personal details and health information we abide by, and protect your privacy in line with the Australian Privacy Principles and The Privacy Act 1988.
Within our business operations our primary database and supporting systems can only be accessed by authorised employees with multi-factor authentication. This means multiple steps of verification beyond just a password.
Each time you login to the online blood cancer support service you’ll be sent a login link via email or SMS. This link expires after 15 minutes and your login session will timeout if you’re inactive for 15 minutes on a public or shared device, and 1 hour on a private or personal device. During login you are requested to inform us if you are on a public or private device.
If you believe your login credentials have been compromised, please contact us immediately at [email protected].
Can I chat to someone via this service?
Yes, once you’ve provided some basic contact details and signed up as a member of the service you’ll have access to our chat function, known as ‘Connect’.
Will you still have people I can talk to over the phone or in person about my blood cancer?
What is the energy coach?
The energy coach enables members to record their daily energy levels over a week, with a dashboard of insights available after seven days. These insights allow users to see patterns, trends, and recommendations via evidence-based strategies.