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Stories

From real patient stories to tips on living well, hear firsthand from people who have faced blood cancer.

We’ve also got the latest research and advocacy news, as well as stories from our wonderful fundraisers and donors. You can subscribe to our e-newsletters and event news here.

Lorie and Troy were on their way to the GP for results – hours later Lorie was in ICU

In February 2021, Lorie Sarson was diagnosed with anaplastic large cell lymphoma (ALCL), putting her and husband Troy in immediate financial distress due to treatment and transport costs.

  • Non-Hodgkin lymphoma
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Lorie and Troy

Expert Series: physiotherapist Julie Allen works with cancer patients to improve quality of life and survival

When Julie Allen was diagnosed with lymphoma as a young professional mum, she thought she'd go straight back to work after treatment. But afterwards she literally felt “stripped bare”. 

  • Interviews with experts
  • Non-Hodgkin lymphoma
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Vicky’s two miracle babies post-treatment

  • Non-Hodgkin lymphoma
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Diagnosed during the pandemic: Renae’s story

  • Non-Hodgkin lymphoma
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Graham’s treatment severely impacted his quality of life

Adelaide man Graham Lewis had two stem-cell transplants and was left with severe graft-versus-host disease. He believes the existence of OCPs would have greatly improved his quality of life.

  • Non-Hodgkin lymphoma
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Robin travelled 1,100km to receive a diagnosis

  • Non-Hodgkin lymphoma
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Esther considers herself “very lucky” she was diagnosed early

  • Non-Hodgkin lymphoma
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Christina’s journey as carer

  • Non-Hodgkin lymphoma
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Talking Blood Cancer

How blood cancer helped Esther find her authentic self

  • Non-Hodgkin lymphoma
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Talking Blood Cancer

Coping with lymphoma and motherhood

  • Non-Hodgkin lymphoma
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Talking Blood Cancer

Expert Series: Dr Piers Blombery on genomic testing

Dr Piers Blombery explains the basics of molecular testing which informs the treatment of blood cancer.   

  • Hodgkin lymphoma
  • Interviews with experts
  • Myeloma
  • Non-Hodgkin lymphoma
  • Research
  • Treatments and side-effects
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Dr Piers Blombery

Improving infection prevention with drug optimisation

Julian Lindsay’s goal is to set up an international study aimed at improving survival and quality of life through drug optimisation.

  • Hodgkin lymphoma
  • Non-Hodgkin lymphoma
  • Research
  • Treatments and side-effects
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Dr Julian Lindsay

Study examines COVID-19 vaccine response in low-grade lymphoma

An Australian study will examine the immune response to the COVID-19 vaccine in patients with the low-grade non-Hodgkin lymphomas.

  • Non-Hodgkin lymphoma
  • Research
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Concord research group

PBAC to consider three lymphoma drugs

  • Hodgkin lymphoma
  • Non-Hodgkin lymphoma
  • Treatments and side-effects
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Acalabrutinib image

Expert Series: AProf. Michael Dickinson discusses CAR T-cell therapy

Associate Professor Michael Dickinson says CAR T-cell therapy is a 'revolutionary step forward'.

  • Acute lymphoblastic leukaemia
  • Chronic lymphocytic leukaemia
  • Hodgkin lymphoma
  • Interviews with experts
  • Myeloma
  • Non-Hodgkin lymphoma
  • Research
  • Treatments and side-effects
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A/Prof. Dickinson enjoying gelato with his daughters in Melbourne

Reconciliation Week

We stand with Indigenous Australians to close the gap in health. We know we need to do better for our First Nations people living with blood cancer.

  • Acute lymphoblastic leukaemia
  • Non-Hodgkin lymphoma
  • Other blood cancers
  • Support services
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Artwork created by Reconciliation Australia to mark Reconciliation Week

My COVID-19 vaccine experience

Blood cancer survivor and midwife, Catherine Wheeler shares her experience being eligible for the Phase 1a COVID-19 vaccine rollout. 

  • Non-Hodgkin lymphoma
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Catherin Wheeler

“Blood cancer was my physical diagnosis but my experience was a far greater mental challenge.”

When diagnosed with a blood cancer as a young adult, Vicky Pellowe struggled to find the relevant information she needed to manage her diagnosis and live well as a survivor.

  • Non-Hodgkin lymphoma
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Vicky with her daughter and husband_feature

“You come back, and you get back into life” – that’s how Patrick lives with two lymphomas

Patrick won't let his lymphomas stop him from achieving his two milestones - to walk 10 kilometres, and to swim 200 metres butterfly!

  • Non-Hodgkin lymphoma
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Patrick-Devine-blood-cancer-australia

COVID has been beneficial to some WM patients

“COVID’s been good to me and quite a few other patients”, says Andrew Warden, who volunteered to be a “guinea pig” on a program initiated by Professor Judith Trotman.

  • Non-Hodgkin lymphoma
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Andrew Warden and Judith Trotman