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Thank you for keeping Jamie safe

Thank you for keeping Jamie safe

It has been a tough year for three-year-old Jamie and his family, but the caring support of donors through the Leukaemia Foundation’s Emergency Tax Appeal has made all the difference.

Jamie was only two when he was diagnosed with blood cancer, forcing his family to relocate from their hometown for life-saving treatment in the city.

Smiling young child pushes a teddy bear in a toy truck
Jamie enjoying time with teddy at the Leukaemia Foundation apartment

His family have been overwhelmed by the heartfelt care of Leukaemia Foundation supporters. This generosity has given Jamie’s family a safe and clean place to call home at Leukaemia Foundation accommodation during such an uncertain time.

Nearly one year on, Jamie and his family are still living at their home-away-from-home, a welcoming place near hospital that mum Nicky is so very grateful to supporters for.

“COVID-19 has added even more stress to our lives. Having this safe place to stay has been a Godsend – your help has meant the world.”

As Jamie enters his maintenance treatment phase, Nicky looks forward to the day she can finally bring her little boy back home. The day Jamie will be reunited with his beloved pet lamb Coco on the farm. Ordinary life back on the farm with a busy three-year-old begins again soon, all thanks to the incredible support of donors and fundraisers.

Be aware of charity scams

Be aware of charity scams

It’s important to protect yourself from scammers who impersonate charities. The below information is from the Australian Competition and Consumer Commission’s Scamwatch website. Scamwatch helps consumers and businesses learn to recognise, avoid and report scams.

If you think you’ve received communication from someone pretending to be the Leukaemia Foundation, please contact us here.

Warning signs

  • You’ve never heard of the charity before, or it is well-known but you suspect the website, email or letter may be fake. A fake website may look almost identical to a legitimate charity site, changing only the details of where to send donations.
  • The person collecting donations on behalf of the charity does not have any identification. Remember, even if they do have identification, it could be forged or meaningless.
  • You are put under pressure or made to feel guilty or selfish if you don’t want to donate.
  • You are asked to provide a cash donation as they don’t accept cheques. Or, they want the cheque to be made out to them rather than to the charity.
  • You are not given a receipt. Or, they give you a receipt that does not have the charity’s details on it.

Protect yourself

  • Approach charity organisations directly to make a donation or offer support.
  • Check the organisation’s name and look them up. Check the website address to make sure it’s the same as what you searched for.
  • Legitimate charities are registered – you check an organisation’s credentials on the Australian Charities and Not-for-Profits Commission (ACNC) website to see if they are a genuine charity.
  • Never send money or give personal information, credit card details or online account details to anyone you don’t know or trust.
  • If you are approached by a street collector, ask to see their identification. If you have any doubts about who they are, do not pay.
  • If you are approached in person, ask the collector for details about the charity such as its full name, address and how the proceeds will be used. If they become defensive and cannot answer your questions, close the door.
  • Avoid any arrangement with a stranger that asks for up-front payment via money order, wire transfer, international funds transfer, pre-loaded card or electronic currency, like Bitcoin. It is rare to recover money sent this way.

Leukaemia Foundation partners with new fitness app that turns exercise into a game

Leukaemia Foundation partners with new fitness app that turns exercise into a game

Thursday 18 June, 2020 

The Leukaemia Foundation is proud to announce a charity partnership with District, which provides a new and innovative way to support the 41 men, women and children diagnosed with blood cancer in Australia every day – by encouraging people to get active and explore their city.

District uses cutting-edge experiential technology to bring cities to life and turn a monotonous workout into an urban exploration game. Perfect for all adult ages and fitness levels, the District app transforms an everyday walk, jog or run routine to a fun individual or team outdoor adventure challenge with virtual checkpoints across your local city.

A generous $8 from every District ticket sold will go to support Australians living with blood cancer. Currently, there are more than 110,000 Australians diagnosed with blood cancer and the Leukaemia Foundation’s latest Blood Cancer in Australia report confirms that in just 15 years, by 2035, this number will more than double to 235,000 people[1].

Leukaemia Foundation General Manager of Supporters Rachael Lance said that by getting active and raising funds through District, participants will be doing something positive for their own health, while also ensuring that all families affected by blood cancer across the country, no matter where they live, can be supported.

“By downloading District and signing up, you are making sure that every Australian facing blood cancer will have someone to turn to every step of the way to access the right information, the best treatment and supportive care.” Ms Lance said.

“Blood cancer is one of the most common, costly and fatal cancers in Australia. There are no screening programs available for blood cancers, and there is no way to prevent blood cancer through lifestyle change.”

“As we strive to help all Australian families affected by blood cancer, we are grateful for the collaboration with District, which would help meet the growing demand on vital patient services in the post-COVID-19 environment,” Ms Lance added.

Utilising GPS geolocation, Bluetooth beacons and augmented reality, District is reimagining urban exploration and community running on a global scale, offering users around the world multiple types of challenges, interactive live leaderboards to track their progress and fun features such as points, badges and prizes to stay motivated and engaged.

“Staying active and connected has never been as important as now, so we encourage all Australians looking for a way to shake up their fitness routine and explore their city like never before to download District, register an account and take up the challenge.”

“Whether you’re a walker, casual runner or ready for some competition running there’s a race challenge for you, and that means there’s an opportunity to play your part in raising essential funds to help save lives,” Ms Lance said.

To learn more about District, go to rebrand.ly/districtraceau2020 or you can use the full link: https://exploredistrict.com/event/district-race-au-2020

To download District, go to Apple Store or get it on Google Play.

-ENDS-

[1] http://www.leukaemia.org.au/how-we-can-help/advocacy-and-policy/state-of-the-nation-my-life-counts/state-of-the-nation-download/

Family’s legacy driving next generation of researchers

Family’s legacy driving next generation of researchers

The Fredericks Family

A generous gift from the Frederiks Foundation will help support the next generation of Australian blood cancer researchers.

Cor Frederik (1927 – 2017) was a businessman, scholar, author, investor, art collector and company director with a busy accounting practice in suburban Brisbane.

Cor was a strong, giving man with an altruistic heart. He believed in giving back to the community and the power of education.

Cor lost his wife of 15 years, Pauline, to blood cancer at just 33 years old – leaving him to raise five young children between the ages of 3-14 years old.

In 2006, he established the Frederiks Foundation, and when he passed away in 2017 his children came together to honour his lifelong ethos to give generously.

The family has dedicated $530,000 to the Leukaemia Foundation’s Research Endowment to support PhD Scholarships in support of Australia’s brightest blood cancer minds.

Leukaemia Foundation CEO, Bill Petch said the gift is an extraordinary investment in the future of blood cancer research in Australia:

“This support will give early career researchers the encouragement, resources and networks to generate new ideas and approaches for tackling blood cancers.

“These scholarships are an important part of our National Research Program and will be delivered in partnership with the peak body for haematology researchers and medical professionals.”

Cor’s son, Paul Frederiks, said his father would be proud to see the money invested with a cause so close to his family’s heart.

“Dad was incredibly hardworking and never stopped learning – he worked and studied right up until his death. He truly believed in the power of education, and we wanted to honour that with this gift,” Paul said.

“Losing our mother to blood cancer at such a young age had a profound impact on all of us kids – it changed so much in our lives then and definitely influenced how we grew up and who we became.

“Supporting the Leukaemia Foundation is ensuring our Mum’s legacy and supporting the training and education of blood cancer researchers is ensuring our Dad’s.

“If the advances in research we have seen in the last 30 years were around when Mum was diagnosed, maybe she would have lived longer. I think Dad would have been very proud of our decision to support this worthy cause.”

Call to give blood generously in support of Australians living with blood cancer for National Blood Donor Week 14-20 June 2020

Call to give blood generously in support of Australians living with blood cancer for National Blood Donor Week 14-20 June 2020

Sunday 14 June, 2020

The Leukaemia Foundation is urging the national community to give blood generously in support of Australian blood cancer patients who are heavily reliant on donations.

It takes at least 9 people donating blood monthly through Lifeblood to treat just one person living with blood cancer. This National Blood Donor Week, Leukaemia Foundation General Manager of People Living with Blood Cancer Kathryn Huntley is stressing the need for more people to donate blood to help these Australians survive and live well with their diagnosis.

“More than 110,000 Australians are currently affected by blood cancer, and many of these people require regular donated blood products to manage their cancer, either as part of a life-saving treatment plan or to counter the side effects caused by the cancer itself or its treatment,” she said.

One 470ml blood donation unit includes red cells, plasma and platelets which are all separated out after donation. One acute leukaemia patient may need anywhere from 5 units to 15 units of blood every month. They could also need around 2 litres of platelets. And the reality is they could need both of these products for the duration of their diagnosis.

Research by Lifeblood shows that almost half of Australians who don’t give blood believe that road trauma is the leading cause of a person needing donated blood. Yet road trauma accounts for just two percent of Australia’s total blood usage – the least of all major causes – while cancer patients are the nation’s largest users of blood.

More than 29,000 blood donations are needed every week, and around 10,000 of them needed for cancer treatment.

“A huge 34 per cent of blood donations help treat people with cancer and blood diseases – that’s more than one third of all donations nationally – so when donations of this precious resource drop, the blood cancer community feels the impact more than almost any other,” Ms Huntley said.

“We are relying on the generosity of Australians to roll up their sleeves and donate to help boost and maintain healthy blood supplies, which are such a critical lifeline for Australians living with blood cancer.”

Ms Huntley said this National Blood Donor Week was a prime opportunity to step up and save lives.

“With 41 people every day diagnosed with a blood cancer in Australia and this number expected to increase to close to 100 people per day by 2035[1], we know more Australians will become critically reliant on blood products into the future,” she said.

“The need for blood products to support blood cancer patients doesn’t stop, so neither should blood donations, and that’s why we want to see more Australians making blood donation part of a regular routine rather than a once-off exercise – now more than ever.”

National Blood Donor Week runs from 14-20 June and includes World Blood Donor Day on June 14.

To find out more about how you can support Australians living with blood cancer, visit www.leukaemia.org.au.

To join the fight against blood cancer by making a blood donation, visit www.lifeblood.com.au.

– ENDS –

[1] https://www.leukaemia.org.au/about-us/mylifecounts/stateofthenation/

Subscribe to receive the Leukaemia Foundation’s news and updates here.

Leukaemia: emotionally, psychologically, mentally the hardest thing

Leukaemia: emotionally, psychologically, mentally the hardest thing

Dave Hetherington and his Ride as One crew
Dave and his band of supporters raised over $400,000 on a Leukaemia Foundation charity bike ride.

Dave Hetherington’s father was diagnosed with a blood cancer called leukaemia. The following are all Dave’s words, shared with the Leukaemia Foundation to help raise awareness of blood cancer during September’s Blood Cancer Awareness Month 2019. 

We lost our Dad, in Ireland, on 29th March 2014 after diagnosis of AML on 18th February 2014.

Emotionally, psychologically, mentally, [it was] the hardest thing personally experienced and it, literally, physically shook my siblings. I and none of us were prepared for that factor.

I find it difficult, still, to comprehend the swiftness – from the initial diagnosis to the final breath. All siblings were there at the final moment which we are thankful for.

Together – with a ‘band of brothers and sisters’ (above) – we raised $400,000 plus on the Leukaemia Foundation Ride As One cycle journey [now called Life Ride], from St Kilda, Victoria, to Lightsview, South Australia, for the Leukaemia Foundation from April 29th – May 5th, 2017.

That Ride As One journey, for me, was a personal and a cathartic honouring of my Dad and an acknowledgement of those who have suffered this dreadful illness and those who will succumb.

Susie Lee: “umbrella of support went up for me”

Susie Lee: “an umbrella of support went up for me”

Susie and Bob stayed in Leukaemia Foundation accommodation while Bob was receiving treatment for leukaemia.

Sadly Bob passed away in 2009, but after he did an “Umbrella of support went up for me,” said Susie.

Susie-Lee and her late husband Bob enjoying a skiing holiday
Susie-Lee and her late husband Bob

“The Leukaemia Foundation reached out to me, sending me information and seeing if they could help me on my grief journey.”

When Susie celebrated her 60th birthday, she asked her friends to donate to the Leukaemia Foundation in lieu of gifts.

“This was a great way to raise some money and awareness for an amazing organisation,” Susie said.

Susie now plans to leave a portion of her estate in her Will to the Leukaemia Foundation.

Contact our Gifts in Wills Officer

Contact Emma for a confidential discussion

Dot Crawford: I lost my 10-year-old son to leukaemia

Dot Crawford: I lost my 10-year-old son to leukaemia

The loss of her beloved son sparked Dot Crawford’s lifelong commitment to the Leukaemia Foundation and her inclusion of a gift in her Will to help other families affected by blood cancer.

Dot Crawford sitting at a table with a cup of tea
Dot left a gift in her Will to help other families affected by blood cancer

“We lost our son on his 10th birthday in 1965. He was diagnosed with leukaemia six weeks before he passed away,” said Dot.

After the devastating loss of her beloved son to leukaemia, Dot and her late husband Maurie developed a commitment to the fight against blood cancer.

Not only has Dot been a passionate volunteer member for more than 30 years, but she’s made the decision to include a gift to the Leukaemia Foundation in her Will to the help other families beat blood cancer.

“In those days there was no treatment or support available; we were left in an emotional and financial hole.

“I have chosen to include a gift in my Will to ensure someone else’s son, daughter, mother or father is provided vital support when they need it most.”

After making sure your family and loved ones are taken care of, a gift in your Will is a simple but powerful way to ensure continued support and care for the increasing number of families facing a blood cancer diagnosis.

Together with Dot, you too can ensure that every family is supported through their blood cancer journey.

Talk to our Gifts in Wills Officer

Contact Emma for a confidential discussion

Keith Gowdie: gift inspired by his teenage daughter’s battle

Keith was inspired by his teenage daughter’s battle

Memories of nearly losing his teenage daughter made Keith Gowdie’s decision to leave a gift in his will to the Leukaemia Foundation an easy one.

Keith Gowdie
Keith Gowdie’s daughter inspired him to leave a gift in his Will

It was more than 40 yeas ago that Keith almost lost his teenage daughter to leukaemia. Unlike many children diagnosed with leukaemia in the 1970s, Keith’s daughter Cath survived.

Keith said supporting the Leukaemia Foundation through a gift in his Will was his way of investing in further medical research and supporting other families affected by blood cancers.

“I’d really like to encourage others to support this wonderful organisation by considering a gift in their Will. Any gift, large or small, will ensure that the Leukaemia Foundation can continue its vital work.”

Emma: Willing to help

Emma: Willing to help

Our Gifts in Will Officer, Emma Quigley, gives her personal account of why she and her husband, Dan, made the decision to support the Leukaemia Foundation and their other favourite charities through a Gift in Will.

Dan, Pearl and Emma Quigley
Dan, Pearl and Emma Quigley

Like many Aussies, I began the new year thinking about future goals and resolutions. My husband and I realised we wanted to cement our support for the causes we feel passionate about, through a gift in our Wills.

I have worked with the Leukaemia Foundation since 2006 and most recently in the role of Gifts in Wills Officer. For a number of years I have been raising awareness about leaving gifts in Wills as a way of supporting the Foundation. I have seen the incredible impact these types of donations have on the lives of patients and families who benefit from our services.

The recent Christmas break gave my family the time to focus on what is important to us and we felt that it was time to amend our existing Wills by including gifts to two charities that were close to our hearts, including the Leukaemia Foundation.

My husband, Dan, and I have a young daughter and like many other families, we don’t have enough disposable income to give regularly to these causes. We know that a gift in our Wills is an easy way of supporting our chosen charities and making an important difference.

Charity support through Gift in Will

Many people don’t realise that you do not need to be wealthy or have a lot of assets to give a gift in your Will. It can be given as a specific dollar amount or a percentage of your total estate.

I feel honoured to be part of the Leukaemia Foundation and see how our work helps patients and their families who are going through incredibly tough times. A gift in our Wills just seemed like a common sense way of extending our support.

Once we made the decision, it was an easy call to our solicitor asking to update our Wills – a simple step which will impact people’s lives into the future and help beat blood cancers.

Leave a Gift in Will

If you would like to know more about leaving a gift in your Will, or if you have questions about the process, please don’t hesitate to contact me on 07 3318 4459 or email me at equigley@leukaemia.org.au.

Please seek professional legal advice before making or amending your Will.

Talk to Emma about leaving a Gift in your Will