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Stories

From real patient stories to tips on living well, hear firsthand from people who have faced blood cancer.

We’ve also got the latest research and advocacy news, as well as stories from our wonderful fundraisers and donors. You can subscribe to our e-newsletters and event news here.

Terry’s ups and downs during 20 years living with CML

Terry Robson-Petch has been living with CML for 20 years.

  • Chronic myeloid leukaemia
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Terry Robson-Petch with his partner and daughter 

Expert series interview: Dr Naranie Shanmuganathan on CML

The greatest unmet need in CML is the ability to predict outcomes at the time of diagnosis according to Dr Naranie Shanmuganathan, a consultant haematologist at Royal Adelaide Hospital and SA Pathology.

  • Chronic myeloid leukaemia
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Dr Naranie Shanmuganathan

Expert Series: Dr Ilaria Pagani talks treatment-free remission in CML

Dr Pagani has a vision for a personalised approach to treatment-free remission in CML

  • Chronic myeloid leukaemia
  • Research
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Dr Ilaria Pagani in the lab

Heather’s in treatment-free remission

Heather Jenkins was one of the first Australians to go on a clinical trial for the first targeted therapy for chronic myeloid leukaemia (CML).

  • Chronic myeloid leukaemia
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Heather Jenkins in 2021

Revised AML, DLBCL and HL Optimal Care Pathways released

Newly revised optimal care pathways (OCPs) provide best practice information for the treatment and care of people living with acute myeloid leukaemia (AML), and diffuse large B-cell lymphoma (DLBCL) and Hodgkin lymphoma (HL). 

  • Acute myeloid leukaemia
  • Chronic myeloid leukaemia
  • Hodgkin lymphoma
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Blood-cancer-research

Nick’s double blood cancer diagnosis and regaining hope

Diagnosed with two blood cancers, Nick's world changed instantly. Then transplant complications challenged him in ways he didn't expect.

  • Acute lymphoblastic leukaemia
  • Chronic myeloid leukaemia
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Nick holding a bag of stem cells

Leanne’s been treatment-free for five years

Leanne Pitman tells us the story of her 'scary' decision to stop her CML treatment.

  • Chronic myeloid leukaemia
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Leanne and Ted Pitman

Expert Series: Dr Susan Branford on molecular monitoring and drug resistance in CML

Professor Susan Branford’s work has underpinned many Australian and internationally significant developments in CML over the last 20 years.

  • Chronic myeloid leukaemia
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Professor Susan Branford in the lab

Latest ALLG clinical trial recruiting for CML

Information on the latest clinical trial.

  • Chronic myeloid leukaemia
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Molecule

The importance of molecular response in CML

Dr Susan Branford's research involved assessing people with CML to determine if monitoring the level of disease during therapy using a molecular marker could predict treatment outcome.

  • Chronic myeloid leukaemia
  • Research
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Professor Susan Branford

Second drug treatment now controlling Leanne’s CML

Leanne Pitman knew she wasn’t well, but it took seven months before she was finally diagnosed with chronic myeloid leukaemia (CML).

  • Chronic myeloid leukaemia
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Leanne Pitman at the Penola café

Chronic blood cancer diagnosis sparks Mel’s passion for awareness

Since receiving a shock CML diagnosis in July 2020, Mel Harris has learnt quickly that the so-called ‘invisible cancer’ can have everyday impacts beyond what many would expect.

  • Chronic myeloid leukaemia
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Mel Harris

Blood Cancer Taskforce develops national plan

The Blood Cancer Taskforce has brought the Australian blood cancer community together to develop the first National Strategic Action Plan for Blood Cancer.  

  • Acute myeloid leukaemia
  • Advocacy and policy
  • Chronic myeloid leukaemia
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Australia icon

Expert Series: Dr David Yeung discusses CML

The researcher and haematologist takes us on a deep dive into chronic myeloid leukaemia.

  • Chronic myeloid leukaemia
  • Research
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David Yeung

Five-year prognosis unacceptable to CML warrior Rona

Rona Wall was diagnosed with CML in January 2002 after noticing that a large black bruise on her arm hadn’t healed after six weeks.

  • Chronic myeloid leukaemia
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CML Blood Cancer Prognosis Story

Rick’s “very happy” with his decision to change to generic imatinib

Rick Razey changed his prescription to generic imatinib twice – most recently to Cipla Imatinib because profits from this drug are donated to the Leukaemia Foundation.

  • Chronic myeloid leukaemia
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Rick Razey and family

Q&A: Professor Timothy Hughes – Part 1

We spoke to world leader in CML research, Professor Timothy Hughes.

  • Chronic myeloid leukaemia
  • Research
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Timothy Hughes presenting

Q&A: Professor Timothy Hughes – Part 2

Here is part two of our interview with world leader in CML research, Professor Timothy Hughes.

  • Chronic myeloid leukaemia
  • Research
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Timothy Hughes

“I was diagnosed with CML then found out I was pregnant”

Elle Halliwell found out she was pregnant in early 2016 – two days after being told she had CML.

  • Chronic myeloid leukaemia
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Elle Halliwell

I’ve beaten a heart attack and CML

Since Chris Davis’ diagnosis with chronic myeloid leukaemia, he’s had three different treatments, endured debilitating side-effects, has taken part in an international clinical trial and is now disease-free.

  • Chronic myeloid leukaemia
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Chris next to a Leukaemia Foundation car