Leukaemia: “It took me to the edge and brought me back” | Leukaemia Foundation

Leukaemia: “It took me to the edge and brought me back”

Blood Cancer Awareness Month hub

Shane Dawe was diagnosed with a blood cancer called leukaemia. The following are all Shane’s words, shared with the Leukaemia Foundation to help raise awareness of blood cancer during September’s Blood Cancer Awareness Month 2019. You can share your story, too, by clicking here.

In November of 2018, I presented to emergency in Gladstone with a sinus infection that just wouldn’t go away – even with antibiotics from my GP.

Just under 3 hours later I was on an Royal Flying Doctors’ Service flight to Brisbane where it was confirmed I had AML [Acute Myeloid Leukaemia]. I didn’t even know what leukaemia was.

For the next week I was poked and prodded constantly to get my exact makeup of my AML. During this time, I made the mistake of Googling my cancer. I wish I had never done this, as for months after I lived each day expecting not to wake up the next morning.

For 8 months I was either in hospital or at the Leukaemia Foundation village. The first week of chemo didn’t work and my hopes sank. The second week was a stronger treatment and I got into remission.

“Woohoo! It’s over!” … Nope.

The best hope of staying in remission was a Bone Marrow Transplant. While waiting for a donor to be found I had four rounds of consolidation chemo, then I received the news that there was no donor anywhere in the world that matched my rare tissue type.

The lady in the picture with me was my only chance. My Sister was a 50/50 related match and I prepared for a haplo transplant. Twice a day for four days I had Total Body Radiation treatment, then three days of the most hard core chemo I had so far – this was the hardest part of my treatment. It took me to the edge and then brought me back.

I was weak, sick and mentally scarred but I survived. I had to wait for 100 days to see if it worked and hopefully return home with my family.

In July 2019 we left Brisbane and finally headed home.

My fiancé was my carer during the whole ordeal and I would not have survived without her. My boys were strong and we are all now back to school and work. I’m getting stronger every week. There are hurdles along the way but I’m slowly getting back to my old self.

I’m on fortnightly blood tests and specialist appointments and I’m seeing a psychologist to help with my fears and trauma I endured.

If not for the doctors and nurses at the RBWH and the Leukaemia Foundation and all their help, I would not be here today. I’m 45, have an amazing family and look forward to after 14 years, finally getting married in March. Leukaemia gives you that kick in the ass you need to stop putting things off!

Posted on September 12th, 2019

Developed by the Leukaemia Foundation in consultation with people living with a blood cancer, Leukaemia Foundation support staff, haematology nursing staff and/or Australian clinical haematologists. This content is provided for information purposes only and we urge you to always seek advice from a registered health care professional for diagnosis, treatment and answers to your medical questions, including the suitability of a particular therapy, service, product or treatment in your circumstances. The Leukaemia Foundation shall not bear any liability for any person relying on the materials contained on this website.

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