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Real stories

Stories from people living with blood cancer, their family, carers, and friends; plus research and advocacy news.

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Access to best practice needed to reduce blood cancer mortality

Patients understand that clinical best practice care begins with an accurate and timely diagnosis.

  • Advocacy and policy
  • AML
  • Myeloma
  • Treatments and side-effects
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Access to best practice needed to reduce blood cancer mortality

Jennifer was diagnosed with myeloma at 27 years old

Jennifer Marx shares insight into being diagnosed with myeloma at almost 27 years old - a condition far more prevalent in older people. Jennifer shares how she navigated the healthcare system, managed treatment and relationships, and her experience having two autologous transplants.

  • Myeloma
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Jennifer Marx

PBAC considering selinexor for a third time

For the third time, selinexor (Xpovio®) will be considered by the Pharmaceutical Benefits Advisory Committee (PBAC) at its November 2022 meeting for the treatment of relapsed/refractory (R/R) myeloma. 

  • Myeloma
  • Treatments and side-effects
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Martin’s setting new records for remission and enjoying life while living with myeloma

During the 22 years Martin Boling has had myeloma, blood cancer of various types has affected four other members of his family too, not just him. 

  • Myeloma
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Targeting DCAF as a novel treatment strategy for therapy-resistant myeloma 

Meet the research team developing a myeloma treatment with maximum efficacy and minimal side effects

  • Myeloma
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From dialysis to blood cancer: Robert’s story

Northern Territory local Robert Smith had been living on dialysis for 12 years when he was diagnosed with myeloma. Robert discusses the importance that the support of his wife, Jo was in his journey. He takes us through his story — from diagnosis, to what it was like to travel to Adelaide for life-saving treatment and his recovery.

  • Myeloma
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Talking Blood Cancer