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Real stories

Stories from people living with blood cancer, their family, carers, and friends; plus research and advocacy news.

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MM24 clinical trial – an opportunity for George

Ten months after his diagnosis and having failed standard treatment, George Yiannakis is the first of potentially 12 Australians to go on the international MM24 clinical trial for AL amyloidosis.

  • Amyloidosis
  • Clinical trials
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AL amyloidosis Expert Series interview with Dr Hasib Sidiqi

We spoke to Dr Sidiqi about his specialising field of amyloidosis.

  • Amyloidosis
  • Interviews with experts
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PBAC recommends daratumumab for newly diagnosed AL amyloidosis

Daratumumab (Darzalex®) could be the first ever therapy to be approved in Australia for AL amyloidosis.

  • Amyloidosis
  • Treatments and side-effects
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Daratumumab

Expert Series: Dr Noemi Horvath on amyloidosis

Noemi Horvath is a highly reputed consultant haematologist at Royal Adelaide Hospital who has dedicated most of her life to her work and her special interest has long been amyloidosis.

  • Amyloidosis
  • Interviews with experts
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Dr Noemi Horvath with Dr Simon Gibbs, Assoc. Prof. Peter Mollee, the evening’s entertainer, Dr Fiona Kwok, Noemi Horvath, and Pat Neely

Sue’s living with the uncertainty she’s counselled others about

When Sue was diagnosed with a blood cancer, she found herself living through experiences she had discussed in one of her talks, This is Not the Life I Ordered.

  • Amyloidosis
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Sue McConaghey at the Chicago Art Gallery

David’s in remission after compassionate drug access

David’s AL amyloidosis is in remission following compassionate access to daratumumab.

  • Amyloidosis
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David and Kathy Boyle with Sam