Real stories
Stories from people living with blood cancer, their family, carers, and friends; plus research and advocacy news.
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To mark World Blood Donor Day on June 14, Jessica Lake shares how her now six-year-old son, Larry, depended on the kindness of blood donors for over a year after being diagnosed with the rare blood disease, aplastic anaemia.
Tony Wakely’s diagnosis with MDS quickly transformed to AML, which he beat with a transplant. But a year later, he was shocked to find out his MDS had come back.
Two new international clinical trials are expected to improve access to new therapies for Australians with MDS as part of the Leukaemia Foundation’s Trials Enabling Program (TEP).
The Leukaemia Foundation provided consumer comments to the Pharmaceutical Benefits Advisory Committee (PBAC) in relation to Otsuka Australia Pharmaceutical’s resubmission for decitabine and cedazuridine (Inqovi®) for high-risk MDS and CMML.
A lot of ‘world firsts’ are involved in an Australian clinical trial that is taking a precision medicine approach to treating CMML, a neglected and serious rare blood cancer that is poorly understood.
Dr Devendra Hiwase thinks every patient with this rare form of blood cancer should have molecular profiling.