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Real stories

Stories from people living with blood cancer, their family, carers, and friends; plus research and advocacy news.

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Graham’s story highlights the need for blood cancer OCPs

Adelaide man Graham Lewis had two stem-cell transplants and was left with severe graft-versus-host disease. He believes the existence of OCPs would have greatly improved his quality of life.

  • Non-Hodgkin lymphoma
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MM24 clinical trial – an opportunity for George

Ten months after his diagnosis and having failed standard treatment, George Yiannakis is the first of potentially 12 Australians to go on the international MM24 clinical trial for AL amyloidosis.

  • Amyloidosis
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George and Patricia second wedding

AL amyloidosis Expert Series interview with Dr Hasib Sidiqi

We spoke to Dr Sidiqi about his specialising field of amyloidosis.

  • Amyloidosis
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Dr Hasib Sidiqi and Professor Morie Gertz

PBAC recommends daratumumab for newly diagnosed AL amyloidosis

Daratumumab (Darzalex®) could be the first ever therapy to be approved in Australia for AL amyloidosis.

  • Amyloidosis
  • Treatments and side-effects
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Diagnosed with a rare blood cancer, Peter turned to online forums for support

Cast your mind back to 2019, and life pre-COVID. For 56-year-old Peter D'Onghia, that meant a relentless travel schedule with his job as an academic and medical journal publisher – something that led to a delay in following up on blood test results that were, as he puts it, "a little bit odd".  

  • Other blood cancers
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Peter had hairy cell leukaemia

Living with PV has become “a normal way of life” for Debbie

When Debbie McFarlane was diagnosed with the myeloproliferative neoplasm (MPN), polycythaemia vera (PV) in 2013, she didn’t realise it was a form of blood cancer.

  • Myeloproliferative neoplasms
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Debbie and Ian McFarlane