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Real stories

Stories from people living with blood cancer, their family, carers, and friends; plus research and advocacy news.

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It took the blood of 100 strangers to save my son

To mark World Blood Donor Day on June 14, Jessica Lake shares how her now six-year-old son, Larry, depended on the kindness of blood donors for over a year after being diagnosed with the rare blood disease, aplastic anaemia. 

  • Blood disorders
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Larry Tan_feature

Diagnosed with MDS, AML, then MDS again

Tony Wakely’s diagnosis with MDS quickly transformed to AML, which he beat with a transplant. But a year later, he was shocked to find out his MDS had come back.

  • Acute myeloid leukaemia
  • Myelodysplastic syndromes
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Tony and Karen Wakely

International precision medicine clinical trials recruiting

Two new international clinical trials are expected to improve access to new therapies for Australians with MDS as part of the Leukaemia Foundation’s Trials Enabling Program (TEP).

  • Myelodysplastic syndromes
  • Research
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AMLM23 Principal Investigator, Professor Paula Marlton

PBAC update on new MDS & CMML treatment

The Leukaemia Foundation provided consumer comments to the Pharmaceutical Benefits Advisory Committee (PBAC) in relation to Otsuka Australia Pharmaceutical’s resubmission for decitabine and cedazuridine (Inqovi®) for high-risk MDS and CMML.

  • Myelodysplastic syndromes
  • Treatments and side-effects
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CMML under microscope

Aim of first-ever CMML study – to improve survival

A lot of ‘world firsts’ are involved in an Australian clinical trial that is taking a precision medicine approach to treating CMML, a neglected and serious rare blood cancer that is poorly understood.

  • Myelodysplastic syndromes
  • Myeloproliferative neoplasms
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Dan Thomas and CMML trial team

Expert Series interview: Dr Devendra Hiwase – more research needed for greater insight into MDS

Dr Devendra Hiwase thinks every patient with this rare form of blood cancer should have molecular profiling.

  • Myelodysplastic syndromes
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Dr Devendra Hiwase