February 2021 - Leukaemia Foundation

Flynn’s one in 1.2 million diagnosis

To mark Rare Disease Day, Laura Winter shares the remarkable story of how her four-year-old son, Flynn has survived an extremely rare blood cancer diagnosis.

Other blood cancers

Expert Series: Dr Cecily Forsyth on how to live your best life with MPN

Dr Forsyth is passionate about what MPN patients can do to improve their health.

Interviews with experts
Lifestyle and living well
Myeloproliferative neoplasms

Dr Cecily Forsyth in the Lofoten Islands, Norway

ET or PV? That’s the question Sue’s been pondering for years

Sue Taylor has been curious about whether she may in fact have a different type of MPN to her diagnosis.

Myeloproliferative neoplasms

AL amyloidosis trials due to open this year offer “new hope”

Two clinical trials will open later this year for newly diagnosed patients with AL amyloidosis with moderate to severe cardiac disease.

Amyloidosis
Clinical trials
Research
Treatments and side-effects

Dr Simon Gibbs at an international haematology conference in Boston, in 2019

Expert Series: Dr Simon Gibbs on all things amyloidosis

Dr Gibbs discusses everything from the incidence, diagnosis and treatment of amyloidosis, to supportive care, quality of life, and how he came to specialise in this field.

Amyloidosis
Interviews with experts
Research

My body wasn’t my own

Jen was into trying wellness crazes and 'anti-cancer' fads. Then she was diagnosed with blood cancer.

Acute lymphoblastic leukaemia
Lifestyle and living well

A woman is sitting down with her fiance and their dog. She is smiling at the camera.

Diagnosed finally at 33 – Keith’s now in remission

Keith Moore was “ridiculously young” to be told he had AL amyloidosis and it took nine months before he finally got that diagnosis.

Amyloidosis

Pandemic gave Mark the chance to heal at home

After a challenging bone marrow transplant in Melbourne during the height of the COVID-19 pandemic, Mark Reid was the first Tasmanian to manage a successful recovery at home with extra immune cell infusions from his donor.