Further resources and links
There are many websites that have information relevant to people living with multiple myeloma. If you need to discuss or get more information about what you have found on any of these websites speak with your specialist, nurse or allied health professional.
Some sites offer online forums. You can put forward a question or try to find someone in a similar situation. You will need to check that the information is credible by checking who prepared the information, what sources were used and see if there is a date.
- Myeloma Foundation of Australia Inc - www.myeloma.org.au (Australian organisation which offers information, education and support and access to expert Myeloma nurses)
- Myeloma UK - www.myeloma.org.uk
- International Myeloma Foundation (US) - www.myeloma.org
- Multiple Myeloma Research Foundation (US) - www.multiplemyeloma.org
- Myeloma Euronet - www.myeloma-euronet.org
Other websites with information about myeloma
- Association of Cancer Online Resources (US) - www.acor.org (99 electronic mailing lists, chat rooms/bulletin boards for people with all different blood and bone marrow cancers)
- Cancer BACKUP (UK) - www.cancerbackup.org.uk (Good sections on transplants and the various therapies used, as well as advice about talking to children)
- Cancer Council of Australia - www.cancer.org.au
- Cancer Care South Australia - www.health.sa.gov.au/cancare (mainly addresses blood and bone marrow cancers)
- American Cancer Society - www.cancer.org
- Leukaemia Research Fund (UK) - www.lrf.org.uk (Includes information about multiple myeloma)
- The Leukemia & Lymphoma Society (US) - www.leukemia-lymphoma.org (Includes information about multiple myeloma)
Is myeloma on your radar?
The Leukaemia Foundation has developed a tool to assist GP’s in the diagnosis of myeloma. Myeloma (also called multiple myeloma) is the most rapidly increasing blood cancer in Australia. The diagnosis of myeloma can be challenging as it is reasonably rare with approximately 1500 people diagnosed each year in Australia. A GP may only encounter a few patients in their career and this may lead to limited awareness of the condition.
For more information click on the link below:
See the other resources and links pages in the Leukaemias, Lymphomas, Related blood disorders, and Living with these diseases sections for more website links, including information on coping with these diseases, transplants and statistics.