The Leukaemia Foundation is holding more than 20 activities across Australia around National Myeloma Day to support families living with myeloma. Events are designed to help people better manage living with the disease and to share updates on the latest research and treatment options.
In this section we provide information which we hope will help you and your family cope with the complex practical and emotional issues that come with living with these cancers and related disorders.
Diagnosis is often devastating, both for the person receiving the diagnosis and for those around them. While it is sometimes difficult to avoid focusing on the possibility of death, it is important to remember that these days, with treatment, many people can be cured of their cancer. For others, treatment can control their disease and they can remain well for a long time.
Living with these diseases can have significant effects on your life and the lives of your family and friends. It is important to remember that different people cope in different ways, and there is no right, or wrong, or 'usual' way of reacting or feeling. Initially, coping with the impact of the diagnosis and the side-effects of your disease or its treatment can all take their toll on your sense of well-being. Normal work and family roles and routines are often disrupted and over time need to be renegotiated as you and your family adjust to the demands of your new situation. It takes time to adjust to a diagnosis of cancer. With help, you will learn to cope with your situation in an effective and positive way that gives you a sense of perspective and control over your own life.
Practical and emotional support is essential for everyone living with the demands of a serious illness. There are a range of services and organisations (including the Leukaemia Foundation) available to provide practical, emotional and financial assistance for patients and families. Health Professionals at your treating hospital will be able to help you and your family access these services.